t4 n2 mo p16 negative

Susie, It makes no difference. Your treatment is tailored to you and will work just as well as on a smaller tumour. the important bit is the M0 which means you have no distant spread. There are quite a few of us here with T4 who have come and gone away cured. Some are still here helping out and will be along some time to offer support.

Good luck for tomorrow. The first day towards fixing things

Morning Susie, so sorry to hear about your diagnosis. I feel for you. I am a fellow wife who's husband is now 7+ months post treatment. He got his diagnosis back in September,but we kind of new before something wasn't right. Anyway, after we got the referral to ENT and then had MRIs CTscans biopsy ect, we got told that he has stage T4N3M0 Our consultant was straight with us, explained that also is curable but it will be a long and bumpy road to recovery. And i am not gonna lie, he was right. My husband had 30 rounds of RT, Monday - Friday., 2 cicles of Cisplatin CR, one every 2 weeks, each of these took about 8hrs and then he still had RT afterwards, these days were exhausting. The dreaded side effects started to show at about 3wks. Dry mouth, talking became difficult,feeling very dehydrated, stringy/sticky mucus that he constantly caughed up, a spid bowl was always close by (not a pretty picture). Always tired and fatigued,slept for most of the day. And then there was the weight loss. He had a PEG fitted, soon after swallowing food became impossible,everything got put through that, even medication. Currently waiting for PEG to be removed,not sure why he still got it,as others said they had it removed much earlier. Yes we had dark days, from being angry to hating everything and everything in between.  Emotions running wild. He got frustrated and scared, at some point he wanted to give up. I guess me and the kids were his motivation. I found myself crying to sleep at several times, but I had to be strong for the both of us.Fasten forward, he's slowly putting weight back on,still finding food he can tolerate that doesn't agrevate his throat. He still gets dehydrated, always has a bottle of water with him. He gone back to work a couple of month ago. We now living a 'new' kind of life if that's want to call it.  His voice changed,his looks have somewhat changed,but I am just grateful he's still with us.So stay positive and strong. Trust to your medical team and ask any question you may have. All my best wishes for now Mel x

Oh I am so sorry for what your husband and the whole family have gone through and you and the children will have been his strength..my family and grandchildren are in Scotland so not close by but mobile phones and face time are amazing..my partner is my rock hes been great and I hope he doesn't get too upset when things get tough ..I am getting amazing support on here..I do ask silly things and prob repeat myself as a lovely lady Dani on this will know lol you sound wonderful and your husband probably looks up to the sky and says thank god he has you by his side ..xx

Hello Susie, thank you so much for that lovely reply, I wouldn't wish for anybody having to go through this without a strong support system, so I am glad you have one. I remember our first session, we got treated at the Clatterbridge Centre in Liverpool, couldn't fault them,every day we pretty much told ourselves We may have cancer,but cancer won't have us.Good luck for tomorrow. Keep us updated. Hugs. Mel x

Susie said:

I do ask silly things and prob repeat myself as a lovely lady Dani on this will know

Daft! No question is silly and repeating yourself just clarifies things. 
As the journey progresses, circumstances change and even though you might have the sane question the answers will change. Keep asking ! And do t be frightened. You’ll get through. Take help where it’s given. My husband was there all the time to help with practical things when my mind couldn’t and held me in his arms when my body failed me. 
He was and still is on the road with me. 

Thankyou so much for your kind reply..you really help a.lot of people on here..big hugs xx

Hi Susie.

You're right, Dani does help us to understand things we sometimes haven't quite 'got' at appointments, and never think questions are too silly to post - they're not.

Many posters here add the TNM staging of their, or their partner's, cancer on their profiles.  When you have some time, click on the usernames you feel could be pertinent to your cancer   By reading through them, you'll be able to see their journeys and outcomes, many of which are really positive.

Best of luck for tomorrow Susie, and best foot forward.  Hugs xxx

We all help each other. You’re pretty good at it too 

I still never understand all the wording Dani, i was looking through an old letter from my consultant, and mine was a 4, but i never took any notice at the time i just wanted the cancer gone.

                                                        Chris xx

chris2012 said:

I still never understand all the wording Dani

It doesn't matter does it , Chris? Understanding or not you have been a brilliant Champ here over the years

Some people like me want to know everything and become experts in their own cancer. Others are happy to put their life and trust in the hands of their team and just get on with getting better 

Both are perfectly valid 

Hugs, my friend