Struggling waiting diagnosis

Fab news onwards and upwards. 
hygs Hazel 

Deb11 said:

but we got the final all clear yesterday. We’re over the moon, the relief is unbelievable.

Heavens, Deb. I’m so pleased for you both. 

Thankyou Hazel, time to stop worrying and crack on with life !

Xx

Thankyou Dani, we're over thr moon  xx

Thanks Patrick, everything crossed you get a good result from the PET scan. The waiting for tests and results is hard but as you say the ball has started rolling now.

Hugs xxx

Was only in yesterday. It was a nurse that did the scope & they took the biopsy. I live in Ireland. During the meeting yesterday they spoke about a follow up appointment Friday week but just got a call from the hospital asking me to come back in this Friday. So obviously its not good news, the secretary could not share any news only that I'm on the list for this Friday. Really panicking now, my heart is going 100 miles per hour. They must have got the biopsy results fast, or reviewed the MRI again. 

Take some deep breaths and try not to panic Patrick; if it's what you suspect, at least you'll know sooner rather than waiting another week.  It could even be that you've moved up the list due to cancellations.  Whichever it is, you'll soon know and then you can prepare yourselves for any developments in what to expect and start moving forward.

Wishing you and your wife all the best.  Hugs xxx

Wish I could say your supicians are incorrect,  but both times I've had cancer and had tests that indicated that it was cancer, or in the case with the biopsies,  proved it was cancer absolutely,  I was called in to meet for them to tell me in person.  All other times I was able to be told by phone that I was clear,. Good news doesn't make people rush out and kill themselves..

Morning Patrick, breathe hon. 

It may not be the news you were praying for, but if not, they're moving quickly, and that, in my opinion, is definitely scary but a good thing.

As you know, my husband had the same quick responses, it's was all a blur tbh but we got through it, and I'm so grateful for all the effort made by his team. 

They saved his life.

Keep hanging on in there. We will be thinking of you tomorrow, so please let us know how you get on.

Hugs, strength and positive vibes being sent your way.

Debbie xxx

Thanks all. I know you have all been here or are here, & know the feeling. I thought I was preparing myself. It is tough with the worry & I’m a very panicky person. Didn’t sleep a wink last night just keep thinking, thinking, & thinking, worse case scenarios all the time of course. No matter how hard I tried (tried to picture being a millionaire & what I would spend the money on) I could not get my mind off it all & get some much needed sleep.

Telling myself that all I want to hear is that it is curable & that all that matters but really worried it is HPV negative because of my smoking & I keep stupidly looking at the survival stats as Im assuming stage 3 or 4 HPV negative (worse case of course), so I have a 30% chance of beating this - I know the stats are out of date & include a mix of different people some of who did not go through treatment.

Can I ask in general do people prefer to know the stage & prognosis? Or is it better to just hear the plan & if it is curable then put the head down & work with that? Not sure what is best for me to be honest, Im an overthinker & tend to take everything as fact. At the moment I’m stupidly using chatgpt constantly & keep putting different scenarios to see my survival chances which I suppose that is why I couldn’t sleep last night. I know it is silly as I’m an individual not a stat & I’m 45 with no other illness & no one knows my specific situation other than the ENT team.

Strangely after the biopsy it feels like the lump has decreased in size significantly, & looked like mostly fluid was taken, yesterday that gave me some comfort. I know that is probably just the inflammation around the lump that is gone for now but surely it is a good sign. Trying to think I’m 45, apart from this no other major medical issue, no pain, no symptom, no primary tumour has been mentioned so far & now lump seems to have shrunk after biopsy so trying to see these as all positive that its not an aggressive form.

Final thing, aren’t numbers & stats strange, don’t know is it just me but if you tell me I have a 30%
chance of survival then in my head I’ve no chance of surviving but if you say I’ve a 30% chance death then that 30% is huge & definitely going to happen.

Sorry for the long message just needed to get it all out of my head.

xxxxx