End of week 2 today

Hi Floss

Have you a feeding tube fitted? If you have then use it. I gave up trying to eat when it became painful. I thought there wasn’t any good reason to keep fighting. 
Tell your radiographers that you need better pain relief. There is no analgesic on earth that will remove the pain if swallowing entirely but background pain can be almost eliminated. 
By the third week I was tube feeding and on morphine. 
The hospital should give you some mouth gels to try. I had Biotene gel but found it too sticky. I just moistened my mouth with tiny sips of water and later when I git really sticky mucous spring water and diet ginger ale 

The mouthwashes I had were Caphosol, Gelclair and Difflam. It’s important to keep your mouth as clean as possible. 
 Taste us going to be a problem for a long time, months I'm afraid 

Hi Floss. Always keep your team updated on how you are, they can give you medication for most side effects, ask for pain killers, if they don't work ask for stronger ones, they won't mind, they don't want you to be in pain. If you have a feeding tube start to use it, if not they may fit you with a NG tube. 

Ray.

Morning Floss, so sorry to hear that you are struggling,and you still got a while to go. Just as Dani said,if you have a feeding tube, use it. I am a wife who's husband was struggling just like you are and so many others, he tried to eat orally as long as he could,but at week 3 he had to admit defeat and was reliant on his PEG,the pain in his throat become unbearable. His mouth became so dry,infact he must have been drinking/sipping so much water because he felt so dehydrated. As for the pain, I would see your medical team and discuss what pain relief will work for you. My husband tried different ones,some didn't work,some made him even more tired then what he already was,others gave him depressions, until he finally found some that helped. You can also ask for something that could help to put some moist back into your mouth. My husband is now nearly 6mths post treatment and is still having a dry mouth. He's been trying something called XyliMelts for a couple weeks now,they seem to work,however, these are not on prescription, his consultant recommended them,they could possible work for you, but ask your medical team first. I guess at this point all you can do is percevere and stay positive. All my best wishes and hugs. Mel x