Bilateral neck dissection swelling

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I posted a few days ago to ask about several issues - numbness and nerve damage being something I hadn’t expected . I’ve been hunting for info on when the large swelling under my chin and above the u-shape scar might start to subside . The surgeons keep saying it’s normal ( I’m 18 days post op) but I’d thought it might be dissipating by now ? Also how soon would you consider compression, massage etc ? I might be being impatient but it looks and feels so unnerving that I’m really hoping it will start to subside soon . 
thsnk you so much for any replies 

  • Hi Elizabeth. If it’s lymphodema rather than just post op tissue swelling it won’t go away unless you help it. Get a referral to your hospital’s lymphodema clinic and the nurses there will show you the best way to deal with it.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • I’ve asked them by email but will maybe push for them to look at it as they haven’t examined scar or swelling since op and  they don’t seem to be inclined to consider any treatment until 6 weeks or so, do you think that’s late ? 
    many thanks 

  • do you think that’s late ? 

    No not at all. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge