The scan results are in

Miserable the above reply as for you.

You’re welcome. I’ve been around 7 years always happy to help our cancers are sadly steadily on the increase and we’re an unknown cancer to many. Hence why we stick around to help. 
hazel xx

Hello there, Just to wish you all the best on this journey, my husband had to have 30rounds of RT and 2rounds of CT, surgery was not an option,having said that, with this cancer having a high curable rate, we are hopeful,it's true, the recovery is brutal, side effects are painful to deal with,sore throut,dry mouth,very sticky saliva,tiredness and fatigue and there is the weight loss, my husband had a PEG fitted well before treatment started,it's the only way he can take food, nearly 10wks later,anyone out there knows when this will get better? We are taking one day at the time,sometimes it feels like we are taking two steps forward and one back, but together we will beat this.Stay strong, don't expect miracles. Lots of hugs Mel x

Hi Mel

I finished chemoradio for T2N1M0 Tonsil cancer HPV16 plus in early June 2023...mid August before I really started to see daylight, it is often two steps forward and one back...hard road to recovery .... October 2023 I was well enough to go to Tenerife....life does improve but just takes time 

Peter 

Good evening, Topsymum. I'm so pleased you are happy with the outcome, and the consultant is confident of a cure. It is also good news to have a feeding tube fitted, as it is a good backup should swallowing become an issue. I wish you all the best during the treatment and recovery. Take care.

                                                                   Chris x

Thanks Mel, I’m so sorry PEG is still the only way your husband can take food. Along with such horrendous side effects I can understand your struggle with looking for positives. One day at a time is your only option and i suppose the only attitude to take is this can’t go on forever. Big hugs -  Lynda

Thanks Chris, after so much worry whilst waiting for scan results the visit to learn exactly what would happen was such a boost. I know it will be hard going but the alternative is not an option. One day at a time is the only way we will get through.

Morning Lynda, thank you so much for your message.I try to encourage him to at least try food orally,but it's too painful,I guess patience is the the key here.x

MRSMM said:

I try to encourage him to at least try food orally,but it's too painful

This is my view from the other side. My mouth and throat really hurt so I took all my "food" via NG tube till I was ready. My husband was a gem and in that respect left me to it. He knew I would eat when I was ready. It's really grim trying eat when you can't. You just get frightened of food, really upset and that sets you back even more.

Hi Mel Recovery can be a long drawn-out thing, and we all take different times to recover, things will get better for him, and he will get there. I was reliant on my RIG for several weeks after my treatment, then I started trying to eat small amounts of food that would go down easily, things like custard, rice pudding, sago pudding, milky porridge, poached or scrambled eggs (where you can add lots of cream and butter for extra calories), it's all trial and error at first. You are right just take it one day at a time, and together you will beat it. We're all here for you, any questions just ask.

Ray.