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Hi

does this affect everyone?

  • Pretty much yes. But it’s temporary. Mist of us make a pretty uneventful recovery if we keep our weight up, stay hydrated do as our team tells us to and be kind to ourselves 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi I was extremely tired during later part of treatment so yes supposed aged  me a little and yes I’ve a few more lived lines in my face but that could be I’m getting older as well I still walk daily and when weather allows ride my bike up to 60 km a day it’s not an electric one it’s all me so at 68 soon I reckon that’s not bad. Plus this week have been digging at allotment. One life just live it is y motto. 

    hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Well done you, I am 56 and watching my husband going through this, I am only working half time at the moment and feel like I am out of energy by time bed time comes.So well done for getting this far x

  • Thanks you im 7 years this year post treatment. Recovery is a marathon nit a sprint. Let h8m sleep when he needs to I found 20 min power naps helped along with gentle walks I started walking to nearest lamppost literally then each day a bit further. 

    hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • A few people have said the same about the sleeping, it does feel like as he's not that sleepy anymore so, hopefully it's a good sign. Apparently he is taking some steps outside outside these days when I am at work. So fingers crossed. All the best x

  • Hi Spencer. My appearance has altered somewhat but this is down to the ops not radiotherapy. I have had 2 maxillectomies over time and a mandibulectomy so bound to have some appearance changes.My lips don't meet properly and the right side of my mouth droops a bit.  I now look about 90% the same as I did before all my ops and I am happy with that. I feel the same inside and have adjusted to the changes and my family say they don't even notice anymore.

    Lyn

    Sophie66

  • Im the same as Sophie where my appearance has changed quite a bit but this is due to 3 surgeries with reconstructive surgery, but the actual radio/chemo will not change your actual appearance . All the best .

                         Chris

    Its sometimes not easy but its worth it ! 

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  • Hi, 

    my surgeries were on my tongue so not visible on the outside unless I try to stick my tongue out, it points to the side. 

    From my neck dissection I have a scar that will hopefully fade (1 month post-op) and an asymmetric smile. That is hopefully going to sort itself out in some months.  

    *****

    Non-HPV tongue cancer T1N0M0? 
    Diagnosed Nov 2024.