energy after treatment

Nothing to lose by going to the physiologist..... I wish my fatigue was all in the mind as my body thinks otherwise....

Thank you all my daughter thought it was just her and something was wrong.  It’s crazy what goes on in your mind when you are having treatment and when your the mother of your daughter having treatment.  Thank you all 

Its a very tough treatment....recovery is also very tough....for patients and carers....

Take care....and look after yourself ...your daughter needs a strong and healthy Mum.

Peter

it must be so hard seeing your daughter go thro this and as a parent myself probably feel helpless that theres nothing you can do to make her better bless you xx stay strong i wish your daughter well she is lucky to have a supportive mum mine was a bit useless in supporting me when i needed her during treatment so stay  as strong as you can and we are all here if you ever need a chat or worried this group are amazing people who have helped me so much xx

yes it will be interesting thats for sure not sure about my c n s sitting in she is always so busy but i do feel since treatment finished the team are not there like they was during treatment i understand they are busy with the patients who are newly diagnosed as an ex nhs worker myself i know how busy they all are but feel now treatment is over the support has slowly dwindled if i message them know can take a week to get a reply during treatment had replies within hours of reaching out to them x

dpanky said:

yes it will be interesting thats for sure

Do let us know how you get on. Every bit of new info helps 

I’m sorry her support has dwindled.  For 7 months I had fortnightly zoom session with the cns, dietician and speech therapist and they still respond promptly if I need them. 

i will do still waiting for the appointment to come thro so probably a long wait before i see them but i will defo let you know whats said x

wow thats so good what area are you in? iam in essex but under a london hospital once my rig came out i see the dieticions salt team once then they discharged me from them and handed me over to my local lot who ive seen once the dieticion and never seen or heard from speech and language but iam having 6 weekly checks not 3 monthly with the oncologist so iam happy with that x

Yes im 13 week to my mind wants to go but my body saying no no ,icarnt do has much has I use to,I was always on the go ,but if I start something I find I have to take a break half way through ,I do but fuel breakfast drinks, I find thay help me a little x