Hi Everyone,
It's so good to hear everyone's different and similar experiences and advice. It makes the whole RT thing seem a lot more surmountable, when I see all you who have got through it X
I was wondering whether anyone here experienced any sort of hearing loss, either as a result of surgery or RT?
I seem to be getting deafer and deafer in my right ear ( the business side), which started before RT but several weeks after surgery, I think it actually coincided with when I started with the Therabite, so it may be causal or just coincidental. Who knows?
Anyway was just wondering what people's experiences and outcomes were?
Thank you
Rx
I think they do downplay this side effect. When discussing chemo and my fear around hearing being hit my oncologist stated that in all his time treating people only one had had any effect.
Quite different from my oncologist. He was quite upfront about it and any patients with existing tinnitus were like you offered carboplatin. I avoided chemo but I spoke to others who were told to speak up if their first cisplatin caused problems.
I remember going through my consent form to be told that cisplatin was ototoxic and that effects could be permanent but that it didn’t matter to me.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
