Been a while

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I believe it was 10 months ago I last posted.

so quick recap, diagnosed with neck/throat and lung cancer.

I’ve had 10 days radiotherapy, pick line fitted, now removed 

chemotherapy then immunotherapy x3

Had a CT scan and found out immunotherapy wasn’t working and the cancer had grown a lot, also they found a crack in my spine.

So I’ve just start Paclitaxel every 3 weeks for 6 cycles, then they said there’s no more treatment unless any trails are available. 
Feeling a little lost and more like a ticking time bomb than I did before.

  • Hello again. I remember you introducing yourself at the beginning of the year. 
    So sorry you’ve run out of options. It’s a crap disease and nobody seems immune. Patients and carers blighted. 
    You might find our group for people living with incurable cancer some help here 

    https://community.macmillan.org.uk/cancer_experiences/living-with-incurable-cancer-forum

    Mine feels like such a totally inadequate reply, but I hope you have close support round you at such a time. Hugs 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thank you any reply means something to me

  • Do you have a Maggie’s near you to drop into. So many people find so much help and comfort there. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Good evening, Casboy. I'm sorry to be reading this update. Hopefully, there are some trails out there that can offer some help along with the Paclitaxel, as Dani mentioned there are other groups on here that might also be able to offer advice. Nowadays there is so much research into new ways of treating cancer, bless you, and all the very best, take care.

                                                             Chris 

    Its sometimes not easy but its worth it ! 

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  • Hi there,

    So sorry to read what you're going through. I just wanted to send a virtual hug.

    Debbie x

  • As I say shit happens lol

  • Hi Casboy sorry to hear your news cancer sucks ,hope pacitel can give you some more time. Have a look at the link Dani has posted but please keep in our group as well, the other group might help give yiu some answers. 

    Hugs Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • FormerMember
    FormerMember in reply to Casboy

    Hi Cas

    The disease certainly does crap on us unexpectedly, we are all rooting for you, new treatments are always in the pharma pipeline, I hope that they can offer something to you in the not too distant future...Chris Hoy certainly gave me a lift with his attitude to cancer.

    Take care

    Peter

  • Hello Casboy,

    So sorry to hear of your latest news, cancer really is a vile disease which seems to be everywhere these days. Hopefully the drugs you are on now will improve your health with each cycle and by the end, there will be a new trial that you can partake in. Can you seek second opinions elsewhere for further treatment? Fingers crossed and praying for you. Best wishes. X