Tongue cancer

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I had tongue cancer last year, treatment was radiotherapy and chemotherapy.  I was told it had gone, felt a new lunp 6 weeks ago I've had a biopsy and MRI scan and was told Friday it's back. I now have to have  CT scan, if it's spread it will be immunotherapy if not it's operation to remove some of tongue. Am so frightened has anyone else had any of these treatments . I feel so alone 

  • Hi Night, I can't give you any info on tongue cancer or immunotherapy, however there are many on here who can, and no doubt will. All I can say is you are not alone, we are all here to help, so ask any questions you have someone will always answer if they can. Stick with us.

    Ray.

  • Hi Night, 

    I have had a part of my tongue removed and a neck dissection to remove lymph nodes. I am currently going through radiotherapy. Unfortunately I can’t help with immunotherapy, but I can regarding the surgery. What would you like to know?

  • Hi Ducklings

    Am just so worried about the surgery, said they would take a skin graft from my arm to rebuild tongue and I will be intensive care for a few days. Worried that I won't be able to eat or speak again. And how much pain I will be in

    I had 6 weeks of radiotherapy and 2 high doses of chemotherapy. I had a feeding tube also fitted. This was first time I had tongue cancer. They said can't have anymore radiotherapy 

  • Hi Night. My brother had an op to remove a very large tumour in his tongue and replace it with a graft from his arm. It was a very serious operation but he was starting to talk and eat before he even left hospital. Took quite a few months but eating/talking got back to near normal.

    Best of luck with your surgery.