My story so far

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In March I had a what I thought was an ulcer at the back of my mouth n then I forgot about it, I went to see the dentist in June who took one look n sent me off to see my gp had an appointment the following day at the hospital, everything was moving really quickly over the next few months, ct n mri scans, tonsils taken out, more biopsys lymph nodes etc but today I was told it has been caught early n is contained to my pallet (I didn't even know that was a thing)  it's taken 5 months to get to this point but I'm told today that I need another ct n mri to confirm which stage it is at n then I can finally start radiotherapy.

I can't wait for this to all be over with n hopefully I won't react to badly since everything has been caught in the very early stages 

  • Hi Liz and welcome to our little group

    contained to my pallet (I didn't even know that was a thing)

    It's palate and it just means the roof of your mouth which is hard extending to the soft bit you can see your uvula hanging from (the little wiggly thing at the back of your throat) My uvula is but a stump after RT demolished it but five years later I am living well.

    I can't wait for this to all be over with n hopefully I won't react to badly since everything has been caught in the very early stages 

    Hopefully not. RT is still a challenge but it's doable. If you are offered a stomach tube grab the chance. There will probably come a time when you won't be able to swallow. Don't be brave with pain. tell the radiographers every day how you feel and they will look after you. They are your channel to the rest of your team.

    Good luck and stay with us. We can help you through 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Loopyliz (great name) Like Dani has said if you are offered a feeding tube take it, they take all the worry out of not eating, if it becomes difficult during treatment. Once you get started with your RT you will feel better about it all, and the time will pass quickly, then you will be on the road to recovery. Be assured the treatment does give a very high cure rate, this forum is proof of that. Stick with us we are all here to help, any questions just ask.

    Ray.

  • Hi and welcome from me.  Glad they have caught it early.  We're here to help you as much as you need in your journey.

    Peter
    See my profile for more details of my convoluted journey
  • FormerMember
    FormerMember

    Hi Liz 

    T2N1M0 HPV16+ Chemoradio finished June2023

    I was misdiagnosed twice, waited nearly two years to be referred to ENT, luckily the cancer had not spread very far, CRT/RT treatment does present challenges for all, though some do get off relatively lightly, but outcomes for HPV16+ are very good.

    Take care and good luck

    Peter

  • Hi welcome from me I too had  spread to soft palate my primary was in tonsil I’m 6 years post che I  radiotherapy living a great life. Echi what others have said my feedingbtube was my lifeline a few manage without it but it aided my recovery. 

    ask any questions in her someone will always reply 

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/