17 wks post treatment - sore hamster cheeks!?

Hi Deborah well done in week 17 fingers x for scan. Did you have flucozonole prescription for the thrush ??I know a few who have had multiple courses before it’s gone 4-5  2 week sessions. 
try to avoid too much sweet stuff. That’s a big trigger as well. 
From memory Dani Beesuit had a period of hamster cheek hers was a blocked saliva gland. Am sure she will pop on. 

keep in touch. 

Hazel xx

Good evening Deborah, when i was recovering i could not brush my teeth so i was given mouth swabs ( a sponge on a stick) as it a lot gentler and will refresh your mouth and remove the "furry feeling" I buy a big bag of them. Its great to hear you are feeling better with positive feelings. All the best for your continued recovery,take care.

                                                                                                      Chris x

Hi Deborah 

Had swollen cheeks, quite worried, lymphedema, gentle massage sorted it, had 3 thrush episodes, Nystatin cleared it each time.

Peter 

Hi Hazel

Thank you, I’ll let you all know

Yes it was flucozonole, I guess I may still have it then, my mouth often stings a lot after eating…..more antibiotics it is

xx

Hi Chris

thank you!! X

RadioactiveRaz said:

From memory Dani Beesuit had a period of hamster cheek hers was a blocked saliva gland.

 Cake Lover 

Yes I had a blocked parotid salivary gland but on the other side. 
My check on the treatment side had been left a little swollen and sometimes I bite it…. Ouch 

Hi Cake Lover

I am like you at the moment as I have been battling thrush for about 3 months. Have tried all the tricks that the doctor recommended, have been using nystatin 4 times a day, washing my mouth out with salt water etc. It is a tough little b*********. My tongue stings and my taste is really bitter. Am going to my G.P. to try and get a Flucozonole prescription so fingers crossed that might help.

As Chris recommended I use foam swabs and have found that really helps with cleaning my mouth. I order them online in a big bag as not able to buy over the counter. 

Lyn

Firstly well done for getting so far. I'm 5 weeks behind you, just had my scan this week with results due on the 1st. Wishing you all the very best for yours when they come

Interesting to see so many people on here mention the thrush, and in some ways its reassuring for me. A couple of weeks back I felt the back left of my tongue go very sensitive and sore for anything to touch (toothpaste in particular was a bugger !) Sat on it for a few days panicking it was the cancer back already, but went to GP and she said straight away it was Thrush. Prescribed Nystan and also some steroids (which are apparently out of production so the pharmacist just gave me more Difflam). Seemed to work for a few days but it's putting up a real fight and not getting much better at all.

Does anybody know if Nystan can just be ordered on repeat prescription, or do you need to see the GP again ?

Ooo yes, I’ve bitten it a couple of times too, seriously ouch!! 
I’ll ask them about it all when I see my oncologist next week

thanks Dani x

FifeFlyer75 said:

Does anybody know if Nystan can just be ordered on repeat prescription, or do you need to see the GP again ?

Nystan is largely ineffective. You need Fluconazole and two weeks of it