1st radiotherapy tomorrow got temp of 37.8

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Had Rig on the 4th. Still really painful and swollen. Rig surgery went bad and ward care was horrible. 8-11 hrs just to get paracetamol. Mask fitting didn’t go well, had to go back for refit and constantly having to call anyone And everyone to find out what’s going one often to be told late afternoon “ you have an appointment in the morning, did nobody say, have you not had a letter “

First radio tomorrow and rinsed out already..

Started feeling off last night, didn’t pick up today, let paracetamol go 7hrs, ten =37.8 over 1Hr period and still 37.5 with paracetamol but no one wants to know .

carry on regardless I suppose. 

im bad at expressing my feelings so here’s one I prepared last night. Don’t laugh. Hope it resonates 

#cancer

Before the Battle

The word hit like thunder, shattering calm,

"Cancer," they said, and I tightened my palm.

The future, was hazy, now ripples with dread,

A path unknown stretching far ahead.

I’m standing at the edge of the storm,

Chemotherapy waits, cold and warm,

Radiation’s burn, the fight soon to start,

A journey etched deep in body and heart.

Fear lingers near, like a shadow at dawn,

Whispering questions of how I'll hold on or will others have to mourn.

Will I lose the light that I carry inside,

Or find the strength I thought I could hide?

The days ahead will challenge my core,

Tests of endurance not like I've ever faced before.

Yet there's a glimmer, small but strong.

A belief that somehow, I’ll carry along.

I gather my courage, piece by piece,

Accepting the fight, though there’s no release.

I don’t know what tomorrow may bring within its wake

But today, I choose to stand and sing for mine and everyone’s sake.

Hair may fall, and scars may stay,

But life isn’t measured by what slips away.

It’s felt in the moments, the love we keep,

The strength that rises when hope runs deep.

So here I stand, not yet defined,

By the battle to come, or the scars left behind.

I may be afraid, but I’m not alone

I’ll walk this path, and I’ll make it my own.

RB

  • Good luck Roger.... tough gig but our best hope....we walk the road with you.... please keep us updated on your progress....

    Take care and best of luck 

    Peter 

  • Wishing you all the best and stick with these guys on here as there truly inspirational and my hubby done hes 6 weeks of rt exactly a year ago now and this was my lifeline. These wonderful people give advise and support to everyone ... hope everything goes ok for you x

  • im bad at expressing my feelings

    Hi Roger....I don't think you are at all.

    That's a sterling effort. 

    Good luck for today. Nothing much will happen for two weeks. Moisturise your neck though. I used Aloe vera in the car on the way home and Cetraben twice daily at home.

    My advice is don't be brave. If you hurt tell the RT team, in fact tell them how you feel every day. Do as you're told by the rest of your support team and you'll get through a day at a time.

    Lots of help here.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi Roger, all the best with your treatment, it's not easy but it does give really high cure rates, hang on to that thought. We are all here if you need to ask any questions or you are worried about anything, and always let your team know of any worries you have. Your team can give you meds for any side effects you might get, so don't suffer in silence. Stick with us.

    Ray

  • Hi roger what lent worry about temperature too much. 38 was the trigger point at my trust. U tend to find the more I took my temperature the higher ur seemed to go. Stress probing. . Good luck today take it one day at a time. Your radiotherapy team are you’re first point if contact tell them any issues. 

    Hazek 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help