Help! Support Please

Oh I’m so sorry this has happened to you 

I can offer one light in your darkness. We have a forum member here who doesn’t post any longer but is quite active in the Oracle cancer trust charity. 
He is some seven months clear of two years immunotherapy and is doing well. 
He has a blog documenting what’s happened. 
I hope it gives you some comfort and inspiration. 

https://ansmackay.wixsite.com/uclgeography/blog

Good evening Steve, so sorry to be reading this post, i do remember your previous posts. I cannot offer any advice as i have not experienced this but hopefully, there are people out there who have been through similar. All i can do is wish you all the best and hope the treatment they are offering does help you, take care, big hugs.

                                                                            Chris 

Hi Steve I can concur with what Dani has just said. I was speaking with Anson today and he’s just had his recent scans and are still showing no further progression. He completed 2 years if immunotherapy. 
Am so sorry to hear your news hope Anson’s story gives you some hope. Ps yes an ultra marathon runner just completed a 24 hour marathon as well 

https://oraclehnc.org.uk/ his story is on here as well 

hugs Hazel 

Hi Steve,

So sorry to read your recent post , like Dani and Hazel said Immunotherapy seems to be the way forward .

Its hard to be given such news………. , give yourself time to let it sink in and then hopefully speak to your Oncologist and begin the next phase in your journey 

Sending big virtual hugs to you both 

Debbie

Thank you for your kindness, everyone.

I am in touch with Anson. We've had a video chat and we're exchanging messages. He's been very supportive.

I just want to say to all the people who are new to this journey, that my outcome seems to be relatively rare. Most people don't have a reoccurrence or metastasis. Please don't be scared!

• That said, the experiences of people who have further problems with this disease are important... we are still a part of your community. Particularly, if it can be seen that some further treatment and living with cancer is possible.

I hope it's OK if I stick around in this group (although I am also looking at the Lung Cancer forum)?

Best

Steve

SteveyN said:

I hope it's OK if I stick around in this group (although I am also looking at the Lung Cancer forum)?

Oh heavens! Yes please stay. 
I’m so glad you are in touch with Anson. He can hopefully give you the support we can’t. 
As you say you in turn can help others here 

Hoping you have many years left living with this 

Hugs 

Brilliant post Steve, it’s so good to speak with others in a similar position to you and can be so helpful .

I had some shocking news at my MRI I was told I had a brain tumour ( sadly my Dad died from a GBM4 aged 60 ) so it scared living daylights out of me . It was on my original scan but they decided the news of a T4 tonsil cancer which had spread to tongue several lymphs etc was enough to deal with ( glad they did).

Im currently on watch and wait ( not cancerous at moment and only need hammer knife/ surgery if it grows)so all good atm

. .my heart goes out to you Steve as it’s not the news you (or any of us want to hear )

It would be great if you can stay with us and keep us updated on hopefully the next phase of you being a warrior .

Debbie

Hi Steven. Glad you’re in touch with Anson he’s a smashing level headed guy.  Living life to the max. 
hugs Hazel. We’re a tight knit community please stay in touch.