I need help. 8 weeks post treatment for tonsil cancer

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Hello... I really need your help and advice. I was diagnosed with tonsil cancer and under went 6 x 5 radiotherapy and 2 chemotherapy. 

Since the beginning of treatment to now. 4 weeks post treatment I am still out of sorts. No energy.  Is this normal? I still feel nauseous and I still have a lot of pain in my throat causing problems with eating. Sense of taste has gone. Losing weight fast.

Has anyone else experienced this? Is this normal?  Any advice re food to try to help put on weight. Any advice would be appreciated. Thank you in advance.

  • Is this normal?

    Hi. Yes I’m afraid it is. I wasn’t eating soft foods comfortably  till  8 weeks and I was still on morphine at 12. By 6 months I was feeling much better but it was still one step forward two steps back. 
    You need lots of high calorie high protein food. Do you have a stomach tube placed? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi Peter 

    Thank you for your kind reply.

    I had a RIG fitted. It has just been removed as it was really troublesome.

    I am encouraged to read that your appetite is good and improving. I will take a positive from that as I am 4 weeks post treatment.

    How are you feeling now? Is your weight stabilising.

    I wish you all the luck and strength for the future.

    JCPH 

  • Hi there

    Yes I had a stomach tube fitted but it was removed as it became very troublesome.

    Hearing your experience I feel I am in similar territory.

    Thank you for taking time to reply I really appreciate it 

    You take care.

    JCPH

  • Hi, JCPH, you are still very early days post treatment, and what you have said is normal. Your appetite and taste will gradually come back, although unfortunately it can take some time. Foods to try, milk puddings with lots of cream porridge with lots of cream, custard, poached eggs, scrambled eggs, anything you can get down really, where you can load it up with cream or butter, so you are getting lots of calories. It's all trial and error. You will get there, it just takes time, for your body to heal itself. Any questions just ask, we are all here to help, if we can.

    Ray.

  • Hi again. You can make really good smoothies if you have a blender. Ice cream ( plus fortisip or ensure…. Whichever you have had prescribed ). Add avocado and banana. Blend and add peanut butter slowly as it blends. Poached egg. Tinned macaroni cheese. Pasta overcooked to make it softer with whatever sauce you can think of that’s not tomato. Philly cheese is good. Scrambled egg with Philly added to keep it soft. Supermarket mousses and trifles. Try any of those to start. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Good evening JCPH, i agree with the other guys comments that it's quite normal to be like this as your body has to recover from the treatment, i would stop trying to swallow food and switch to food supplements until you are starting to put weight on, im surprised you have not been fitted with an N.G feeding tube instead of the PEG, keep an eye on your weight as its important you start to put weight back on. Enjoy the rest of your weekend, all the best.

                                                                                Chris 

                                                                                                 

    Its sometimes not easy but its worth it ! 

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  • Thank you so much for your valuable advice it is appreciated. 

    It is so reassuring to know you are out there. Thank you once again.

  • Hello

    Thank you so much for your advice. I have a consultants appointment on 13th June. I have been recording my weight. I have taken your valuable advice on board.

    Thank you.

  • Hi It’s normal what you're feeling some days 2 steps forward and 1 step back. No appetite no desire to eat all normal. I took the mantra food is fuel and derived no pleasure from anyth8ng for a good 6 month. It took me 15 month to start and our weight ok just try to get calories  in. I found 6 small plates of food easier than 3 square meals a day. Dani’s given great suggestions .

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now 5 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help