Maxillo Facial Surgery referral

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Hi everyone, 

Technically not diagnosed. But have been  referred to the maxillio facial team on a 2 week wait. Really worried! This seems to be the only active uk forum I could find. 

At the end of January I noticed a white patch on the inside of my cheek, assumed oral thrush from some previous medication I'd taken. Treated it twice and nothing. Made a gp appointment, he thought lekuplakia (not sure how its spelt) so advised some medicated mouthwash. Still no improvement. Now started to become red and slight sore. 

I have spent the last 11 days on steriods, although no longer sore, still there. So he has referred me to the above. I have an appointment Monday. 

I'm unsure what to expect, it feels like I've spent months worrying already. It's literally consuming me. I'm 32, have 3 young children. 

Thankyou for reading! 

  • And how do I find out that, please?

  • And how do I find out that, please?

    Whoever referred you will have sent you to a named consultant. Ask them. I heard nothing about my referral for three weeks so contacted the consultants secretary to be told my cancer referral had been downgraded to routine. I kicked up such a fuss I was seen the following week. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • I would have thought they would be treated the same Gemmary, as Dani advised please get in contact with your consultant or even the dentist as they should get a letter back from the Maxillofacial department. Take care.

                                                                Chris x

    Its sometimes not easy but its worth it ! 

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  • I've got a referral this wed. Only waited a week.goy ulceration inside my cheek with red and white patches and swollen lymp sides possibly. Iawful pzin hnder my neck and throat and in my ear. 'm so scared x

  • Sorry for the spelling I'm so tired lol. I've just turned 40 and have 4 children x

  • That's really good you weren't waiting long! We sound similar in terms of symptoms. I have made myself so sick with worry it's unbelievable. I've got my biopsy on Wednesday. I'm scared, for the actual procedure and the results.  

    I apologise non of that is reassuring, just more of a same boat sympathy. It's so hard and scary. 

    BUT there are some wonderful posts and people on here, loads of positive stories, advice, reassurance etc. Your definitely in the right place. Good luck for Wednesday. I hope ot brings you some positive newsFingers crossed 

  • Thank you so much darling x sending you lots of love xxx

  • I've had lots of procedures called panendoscopy.  That is where they put you under and have a good root around to see what is what.  I have always found recovery is really quick and relatively painless.  Unfortunately you will normally have to wait around 2 weeks for the results although I had one where they woke me up to tell me there was nothing of concern.

    Waiting sucks, so try to fill your days with something to take your mind off things.  Don't Google anything.  Ask on here and we will do our level best to help you.

    Peter
    See my profile for more details of my convoluted journey