Fibular flap surgery

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Hi All, I am currently 18 mths past neck disection. I had part of my fibia bone used to replace jawbone. I have had problems with walking ever since. My big toe & second toe are now hammertoes. Making it extremely hard to walk on that leg. Xrays of foot show nothing wrong. Could this be nerve damage, nerve entrapment? Anyone have this happen to them? Fibia flap survery is usually a quick recovery. Where you are back up & walking again after 4 weeks.  

  • Hello Pagerino, I had fibula free flap surgery over three years ago (I am now 81) my big toe and two others are like yours and have been since surgery, I was told that unfortunately it was nerve damage; however it has never stopped me from walking, a bit less steady perhaps, just have to be aware.  I do get discomfort from this damage also on the top of my foot, which is a bit tricky getting shoes to be comfortable. I massage my foot and leg everyday as a matter of routine, because I also find that the blood circulation has been affected, foot and lower leg feel like blocks of ice most evenings. Alas part of my new normal. Sorry you are finding walking a problem, I can only suggest that you massage your feet often and do the foot and leg exercises daily. Ask away if I can be of any other help, not many of us jaw folk talking on the forum at present. All best wishes.

    June

  • Hi June, thanks for the speedy reply. I am so grateful to hear from you. My own doctor, who did the surgery didnt even know what to say. He just didnt have any answers. Go figure. I get alot of pressure on my foot from my big toe not being able to lay flat. This creates a callus on the side of my big toe up top. My ability to walk pain free has thrown my whole walking gait off. I dont know how you do it. Did they ever suggest surgery to release nerve? Thank you so much for responding.  

  • Couple of years ago one of my Consultants asked if I wanted him to refer me to relevant doctor, but to be honest I just felt I really didn’t want any more surgery if I could avoid it. Yep, I’m a whimp!

    June

  • Good evening, Pagerino. I had the same operation in 2009, but it hasn't affected any of my toes. However, I do get pain in my ankle, which normally worsens in the evening when I'm less active. I think I was walking properly by about five weeks, so it does sound as if it's nerve or tendon issues, which might improve in time. Alternatively, further surgery could be done to improve it, especially after 18 months. Only a specialist can answer this. I hope you manage to get some relief. I take liquid morphine (oxy-codone if it becomes too bad). All the best.

                                                                     Chris.

    Its sometimes not easy but its worth it ! 

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