Waiting for diagnosis

Hi Shaz2407, I really do hope your biopsy result comes back negative, you are right the waiting for results is terrible. Be assured if it is cancer, these cancers are very treatable, and the cure rate is very high. If you need to stick with us, we will help you as much as we can, we are living proof that you can go through this, with good results. If you have any questions just ask, someone will answer if they can.

Ray.

Hi Shaz2407 

Welcome to our community but sorry to see you here. You are very welcome to share your thoughts here even though you have no diagnosis yet. Kudos to your dentist for getting you seen so quickly; your consultant too for getting that biopsy done straightaway. 

If it is cancer it has been caught remarkably early. Oral cancers are curable so hold onto that. I have a neighbour who had exactly the same as you describe. She had some surgery to excise it and that was the end of it.

As for telling your boys you  have to say you found an ulcer on your tongue which is cancer but it is curable and they mustn't worry about you. Kids are remarkably resilient. They will surprise you. I have a grown up daughter who  lives in Berlin. I waited  not only till I had a diagnosis but till I had a treatment plan and a start date. it wasn't easy but I didn't want to worry her. She herself has a health anxiety and I had to video call her to tell her. She was marvellous. I have an entry in my blog where I recall that with a nasogastric tube snaking up my nose she told me I was beautiful. Broke my heart!.

Fingers crossed for you 

Stay with us if you need us. There is always somebody to talk to here

Hi Shaz welcome from me as well and Danis covered the basics, so won’t duplicate them. But yes kudos to dentist for being pro active .The waiting’s the worst part , but old on to the fact that oral cancers caught early respond extremely well to treatment. Best advise I can give you is keep busy box sets for me through the waiting game. Fingers x yiu don’t need our help but if yiu do we’re a friendly bunch always willing to help. 

hygs Hazel 

Thank you all for your replies. I will hold on to the thought that if it is cancer and it’s been found early enough, then it will hopefully be dealt with easily. Unfortunately I’ve already googled some stuff and really wish I hadn’t!!

My boys both know I have an ulcer which I’ve seen the dentist about, but that’s it. My youngest son has a friend who has terminal lymphoma and I know how badly it has affected him. He’s at the end of his degree, working on his final project, and I just know bad news about me will completely throw him. So that’s my biggest worry about having to tell him/them.

Dani and Hazel, I will have a look at your blogs -thanks for the links. 

Thanks for making me feel welcome here. 

Shaz2407 said:

Dani and Hazel, I will have a look at your blogs -thanks for the links. 

Please bear in mind that what Hazel and I went through is really the rough end of this treatment. Tongue cancer often has a different perspective and it’s a million miles away from treatment for lymphoma. So please do take them both with a pinch of salt. 
Google? Hmmmm yes it’s what we reach for but honestly it’s full of alarming inaccurate information so please try not to. 
Its not long till you get your results so just keep busy. 
Hugs 

You’re so right about Google!! I won’t bother trying to look things up from now on.

I had to retire through ill health 6 years ago, just before I turned 50, because of issues with my neck and arms. This unfortunately has meant I haven’t been able to do very much with my days as I’m in constant pain. However, I am studying with the open university - to try and keep at least some brain cells active - and am an avid knitter, so at least can fill some time in the day with those. I think part of the problem right now is that I have too much time to sit and dwell on things - and search the internet!!

Hi , wishing you all the best and these lovely warriors on this forum are so good and supportive ... google should be amashed of itself and come here rather than google as it's no negative XXX

Shaz2407 said:

am an avid knitter,

Me too. I’ve just finished a Gansey and my fingers are itching to get going on something else. 

Hi I too am an avid knitter and my crocheting hook is with me even now iver in Spain. I can’t walk pasta wool shop without buying something. Keep off the internet there’s good things but yiu need to know where to look. Stick with us on here we will hold your hand if it’s needed in meantime knit squares they are easy and don’t need concentration. I’m in awe of Danis ganseys 

XxHazel 

How nice to find other knitters here! I mostly knit jumpers and cardigans and find it nicely distracting.

I just got my appointment letter through- it’s on 3rd of April, so another 2 weeks to wait and worry.