Hi I am new to this forum. I was diagnosed yesterday.
Really worried. Not sure what to expect. I am going to have 6 weeks of radiotherapy
5 days per week and chemotherapy for 6 weeks once a week.
I am pretty scared but putting on a brave face for everyone.
Will I be vomiting a lot? I hate being sick any advice? Many thanks
Hi JCPH, welcome to the group none of us wanted to join. However, as we are here, we all help each other where we can. It is very scary, but once your treatment gets under way you will feel better about things. The treatment you are having is pretty much what many of us on here have had, it's not easy but it does give good results, with a high cure rate. As for vomiting, you will be given anti-sickness pills to deal with any sickness, they will give you something for any side effects, you may get, so always let your team know, as and if you get any. You will be in good hands, during and after the treatment. You can ask anything you want on here; someone will always answer if they can.
Ray.
Hello Ray thank you for responding if you get 2 messages my phone did strange things.
I am still getting my head around the diagnosis (2 days ago) it feels like a roller coaster that's out of control which I guess you are familiar with too.
I have taken on board your wise words and thank you so much.
JCPH
I am pretty scared but putting on a brave face for everyone
Hi JCPH welcome to our little community.
Being scared is natural. You face so many uncertainties that Google just magnifies so my first bit of advice is to leave it alone for now.
Don't worry too much about being sick. Chemotherapy can make some people nauseous but you'll get drugs for this. They don't always work but there are different kinds and there will be one to suit so make sure you tell your chemo team if you are uncomfortable. I avoided chemo but I've talked to many people here who say that it's much better to take all the pills you're given whether you fee sick or not.
By week four I was on morphine and that did make me feel nauseous.
Please don't feel you need to be brave for anybody else. These few weeks of treatment are rubbish b ut they soon fly by.
Most throat cancer is HPV positive and cure rates are in excess of 90%....so hold onto that
Have a look round the forum. There are folk in different places along the road so you can get an idea.
You might want to look at some profiles too....just click on the names MarkEL Petlamb and if you feel up to it you can look at my blog linked at the bottom of the page.
One last thing. Are you being fitted with a feeding tube? There may come a time when you won't be able to swallow. That's normal. Don't be afraid of it. Pain can be mitigated and it doesn't last forever
All the best
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I am not sure you are getting my messages I just want to thank you for taking the time to respond with your information which I appreciate
Hi again. The forum web designers are messing about with the format.....again. There's a glitch. If you post a message and don't see it straight away refresh the page and it's there
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
PS. Oh and get the radiographers to cut eyeholes in your mask (some come with them pre-formed but some don't) It makes the session easier if you can see out. Some hospitals let you look round the radiotherapy suite before treatment. Ask if you can. It reduces the fear of unfamiliarity. You'll find the radiographers are all very kind and helpful.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi JCPH
People react differently to treatment, some will get away with minor side effects....others will not be so lucky.
Stick with this forum ....it will help you immensely, all on here have walked the treatment walk, keep Dr Google to a minimum, use Macmillan, NHS etc websites.
Stay in touch
Take care and best of luck
Peter
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