Dry Mouth

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Hi All - before I ask for advice I just want to say how comforting it is to read The Macmillan. Always come here when days are not so happy. Anyway I am now 8 weeks post radiotherapy treatment and moving forward slowly. I seem to be struggling quite a lot lately with the dry mouth problem.  Any suggestions for a magical relief.

  • Hi  

    Eight weeks is pretty early but if you can chew then sugar free chewing gum is pretty good. PUR ( Amazon) make mint free varieties. I’m sure chewing stimulates whatever salivary function you have left  

    There are masses of products. Salivex works for me better than any other. I use the pastilles and I get them  on prescription. 

    A pocket water spray works better than sipping water in my opinion. 
    Lastly it might be worth exploring acupuncture. There are two posts in my blog linked at the bottom of this post. 
    There will be lots of other replies so I’m sure you will find something to suit. 
    Best wishes 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Thank you so much Dani for answering,  Ordering chewing gum now,

  • Definitely sugar free gum was my saviour. I'm 5 months post treatment - still get a dry mouth sometimes - but chewing gum sorts it. 

  • Hi Silvergoddess

    That dry mouth is sure a bother but does improve slowly although may never go away completely.

    I found particularly at night that Xylimelts worked a treat and kept my mouth nice and moist most of the night. You can get them online although here in Australia I can buy them at some chemists. I have also found Biotene or Oral7 dry mouth gel or a similar brand work quite well. You work out what works best for you over time. Sometimes when I am out a quick spray of Biotene or Oral7 dry mouth spray keeps me going too. I can buy these products at selected chemists but have to shop around a bit sometimes.

    The xylitol chewing gum for dry mouth is not an option for me as it sticks to my dentures but it is a great idea.

    I have a bit of a chemist's shop going here.

    Best wishes

    Lyn

    Sophie66

  • Hi sugar  free gum  bioxtra mouthwash are my saviours xyimelts at night time. I also had auricular acupuncture which I swear kickstarted my saliva. 

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now 5 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help  

  • Did your nurse give you BioXtra  works well 

  • Hi Paul my oncologist gave it to me. It’s helps as it’s ph neutral but it’s not a saliva substitute. It’s moisturing ti start with I had to dilute it with bottled water I still can’t drink tap water ours as too much limescale in it. 
    It is on my repeat prescription even now 

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now 5 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help  

  • Hi Sophie66. -  thanks for your suggestions.  My Amazon basket is being loaded and yes I will try them all util I find what suits me.  Thanks again !!!  

  • How about AS Saliva Orthana Spray, I have that as well ,         

  • You can try it I’ve had it to me it’s like fish oil. !

    all you can do is try it 

    hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now 5 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help