Hi All - before I ask for advice I just want to say how comforting it is to read The Macmillan. Always come here when days are not so happy. Anyway I am now 8 weeks post radiotherapy treatment and moving forward slowly. I seem to be struggling quite a lot lately with the dry mouth problem. Any suggestions for a magical relief.
Eight weeks is pretty early but if you can chew then sugar free chewing gum is pretty good. PUR ( Amazon) make mint free varieties. I’m sure chewing stimulates whatever salivary function you have left
There are masses of products. Salivex works for me better than any other. I use the pastilles and I get them on prescription.
A pocket water spray works better than sipping water in my opinion.
Lastly it might be worth exploring acupuncture. There are two posts in my blog linked at the bottom of this post.
There will be lots of other replies so I’m sure you will find something to suit.
Best wishes
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Thank you so much Dani for answering, Ordering chewing gum now,
Definitely sugar free gum was my saviour. I'm 5 months post treatment - still get a dry mouth sometimes - but chewing gum sorts it.
Hi Silvergoddess
That dry mouth is sure a bother but does improve slowly although may never go away completely.
I found particularly at night that Xylimelts worked a treat and kept my mouth nice and moist most of the night. You can get them online although here in Australia I can buy them at some chemists. I have also found Biotene or Oral7 dry mouth gel or a similar brand work quite well. You work out what works best for you over time. Sometimes when I am out a quick spray of Biotene or Oral7 dry mouth spray keeps me going too. I can buy these products at selected chemists but have to shop around a bit sometimes.
The xylitol chewing gum for dry mouth is not an option for me as it sticks to my dentures but it is a great idea.
I have a bit of a chemist's shop going here.
Best wishes
Lyn
Sophie66
Hi sugar free gum bioxtra mouthwash are my saviours xyimelts at night time. I also had auricular acupuncture which I swear kickstarted my saliva.
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Paul my oncologist gave it to me. It’s helps as it’s ph neutral but it’s not a saliva substitute. It’s moisturing ti start with I had to dilute it with bottled water I still can’t drink tap water ours as too much limescale in it.
It is on my repeat prescription even now
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Sophie66. - thanks for your suggestions. My Amazon basket is being loaded and yes I will try them all util I find what suits me. Thanks again !!!
How about AS Saliva Orthana Spray, I have that as well ,
You can try it I’ve had it to me it’s like fish oil. !
all you can do is try it
hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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