diagnosis

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hello, i had the oncologist appointment on tuesday, the doctor was a bit vague on treatment and what would happen without treatment, offered up one solution, chemo then radiotherapy, for the tonsil cancer, they have classed it as T4 N3 and have been told that the chemo will start in 3 weeks, very scared as the lump is very big, it is in the lymph node and is starting to creep up the side of my face and swollen quite badly, the doctor told me she is concerned it will split the skin due to it's size as it is advanced, feeling very over whelmed and anxious as to whether the treatment will work to shrink this massive invader and why she was being vague on some questions, i didn't really take in a lot of what was being said, just happy i think that they told me it hadn't spread to any other parts of the body, just this giant lump on my neck, i wonder would anyone out there have any advice on preparing my body for what is to come, diet wise? i am a vegetarian so eat very healthily anyway, but think i might need a different route for chemo, i am also inherited type 2 diabetic triggered by anxiety and stress, you get over one scare(that it hasn't spread) only to be confronted with will i survive the treatment? she did scare me with that as she told me i could die from the treatment, i know one step forward one step back, i hope all those going through the same right now, try to keep positive and hope for the best

  • Hi ichi 

    The death warning is standard. They give it to you before chemo and surgery so don’t attribute too much to this . 

    I have a friend who was vegetarian before she had treatment but made some compromises to keep her nutrition up so don’t feel guilty about abandoning your beliefs.

    I know it’s easy to miss information during consultation which is why it’s useful to take someone in with you. I would ring your CNS to clarify things. 
    What induction chemo are you having? Will you be hospitalised for all of it? Are two is start with. 
    Keep yourself as fit as you can. Eat well, maybe get a little weight on. 
    Your dieticians are part of your Multidisciplinary Team and will be well experienced in dealing with comorbidities so rest easy on that score. I can recall many people here with diabetes getting through treatment. 
    At least you now have a start date to get your head round. It’s not long. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi ichi Sorry to hear this . Just remember you are now in the hands of the experts. It isn't easy absorbing the information and things can go amiss and misunderstood. I would advise you to stay as healthy as possible as it really helps recovery All the Best Minmax  Stay of google also

  • Hi ichi

    So sorry to hear about your recent diagnosis , I had the same as you T4aN3MO  mine was huge like yours but recently had a scope( camera up nose) and Oncologist sad no sign of tumour just lots of swelling and  sore areas from radiotherapy x

    Its a terrifying time sadly we've all been there( and none of us want to go back) keep OFF google , keep that overactive brain super busy watch tv films read walk do all the things you love to do eat all your favourite meals.

    Once you start treatment the anxiety eases , I had 7 weeks Radiotherapy 2/3 overnight Chemos .You will get through this its tough but if I can do it anyone can xx

    My PIG( same as a PEG) saved my life I didnt want to have it but so glad that I did.. it wasn't great first week but had settled down after second one . Still use it daily without a thought x

    Im 12wks post treatment made huge improvements this week driving , cooking managed to eat some porridge.   

    This is a wonderful group full of experienced, knowledgeable and very supportive people.

    We will try and answer any questions you have and we will  be hear to listen to your worries and fears x

    Sending you a virtual hug

    Debbie

  • Hi Ichi ,don’t overthink the warnings it’s like the side effects we get told about it’s very rare we get all of them  Best advise keep busy watch crappy tv if it takes yiur mind off things. Like Dani I know a few vegetarians who had to compromise their beliefs and some who managed without additional protein. Best advise if they offer a peg take it and use we  all think we will be able to maintain our nutritional and hydration intake it’s rare that most of us manage to.. I had 7 affected lymph nodes and now over 5.5 years post treatment and happily living my life. Stick with us we will all help out no questions are too silly.
    Next time  take a pen and paper or ask if you can record the consultation .

    hugs Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • i wonder would anyone out there have any advice on preparing my body for what is to come, diet wise?

    PP do ask your hospital if they have any Prehab programs. Some trusts are running them very successfully

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge