Mould fitting

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So I had my Mould mask fitting  today which actually  went well in fact it was quiet relaxing .Ct scan was as usual a little  trouble  finding  the vein for the canula but 3rd time lucky..All positive then came home to find my Diagnoses letter in the letter box which when you see it in black and white  seemed to hit home all over again. Felt like I'd been punched in the stomach  all over again .Then my daughters  came home from college and organised a file for me the all my appointments and treatments which really helped and they set up alarms on my phone for my Mouth excercises so feeling OK again now. Roll on next week

  • I finished treatment for a tumour at the base of my tongue - radio and chemo 27 months ago. All I can say is take it one step at a time. I had great advice on this forum and I think.the most notable was its a marathon not a sprint. 

    Ive been lucky and I've got through it pretty much unscathed (so far). Its natural to be anxious, but I believe from what I've seen and heard, this type if cancer is one that has a very good success rate - so trust the process. 

    Lots of luck and keep asking questions, the folks that give generously of their time on this forum are very knowledgeable. 

    Rachel age 59 and enjoying food againHeart eyes

  • organised a file for me the all my appointments and treatments which really helped

    Later on you’ll need either a spreadsheet for meds and food or just a list pinned on your kitchen wall. That helps too

    I had a simple list and a file for appointments and letters. 
    I kept my discharge letter after five years but the rest was ceremoniously burned in the Rayburn

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • That's great to hear your doing so well and thanks for your advice .

  • Good advice again my Daughter is very organised  im sure she will take over that too.

    • Good evening Perry, we kept every letter from diagnosis to every appointment letter, which we then used as evidence for applying for PIP.  We didn't know that living with cancer is actually a legally disability. Maybe something you could consider. Best wishes Mel x
  • Yes,  it's quite a task during treatment trying to find veins for various procedures (there's quite a lot of them), the pesky little veins seem to play hide and seek with the nurses.

    Good luck with the treatment...and recovery...keep posting.

    Michael

  • Will do thankyou 

  • Well done with the mask fitting and CT scan Perry, i used to hate having canulas fitted, especially after a couple of attempts, i found that some nurses are better than others at doing this, which is only natural, i used to look the other way Slight smile. That's a brilliant idea, with your daughter organising a folder for you, as you will find it gets very busy with appointments etc., i think i still have my folder in the loft from 2008. Now all you have to do is concentrate on the next steps, i tried to keep myself occupied so it took my mind off the operations and treatment. Wishing you all the best, take care.

                                                    Chris 

    Its sometimes not easy but its worth it ! 

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  • Thankyou your all l really helping .