16 weeks post treatment

Mine was base of tongue but my tonsils and uvula were obliterated by the RT

But there is going to be a lot of inflammation there so try not to worry. When is your next review? 

Hi Dani,

Next review should be around 1st Feb. I suppose it will have taken a hammering in that area so will be pretty inflamed as you say.Certainly not as painful as it was a few weeks ago.

Thanks,

Turi

Hi Turi

T2N1M0 tonsil cancer....CRT finished June 2023.

Offending tonsil was partially removed during biopsies....75%

Inflammation meant that I did not look at the mess my mouth was in post CRT....but my wife did...she assured me that offending tonsil was well and truly zapped....not long after CRT finished.

Can have a wee look myself now....she was right ....both tonsils have been zapped.

Peter

Turi said:

suppose it will have taken a hammering in that area so will be pretty inflamed as you say.

Absolutely. 
Youll be getting a scope at next review. Ask to watch and get your oncologist to give you a tour round. 

Thanks Peter,

Don't think I can look in there ! Brings me out in a cold sweat.Very very squeamish !

Turi

Hi Dani,

Had a scope on first visit back to ENT.Consultant seemed happy.As I replied to Peter E I'm very very squeamish may have to build up to having "a tour around" !!

Turi

Turi said:

I'm very very squeamish may have to build up to having "a tour around" !!

So you don’t know if it’s enlarged just now. It just feels sore? Not surprised. Stop worrying about it. 
I have been very involved with what my throat looks like right from the start. I figure that if I’m going to keep an eye on it I might as well know what the new normal is. 
My dentist used to drive me bats yakking on about how much leukoplakia I had in my throat. He’s wrong, of course, it’s scar tissue. I told him to stop looking in the end as I was doing a better job. 

Hi mine like Danis was obliterated I also have no uvula so can’t say  tonsil was swollen as radiotherapy melted mine away. I love watching the scope on the replay , I got a running  commentary every time from consultant as well. But yes you’ll still  be inflamed just ask at next consultation they do it regularly know what they are looking at. Plus remember it’s winter iur throats are more susceptible in early years to the changes in the weather. 

Hazel xx

Hi Turi

I don't look in my mouth either as I have decided for me ignorance is bliss. When I have looked (which is a bit difficult as I have very limited mouth opening) I see things that are not normal and then I get anxious. When I brought up these issues with my consultant he always said 'nothing to worry about.' I decided I would let him decide what is normal and what isn't.

I now only ask him if there is something sore in my mouth, which is rare.  I don't want to stick my head in the sand completely but I don't want to go through unnecessary worry either.

It is not mandatory to look particularly if you don't know the difference between what should be there and what shouldn't and radiotherapy and ops play havoc with what normality now is.

Best wishes on the ongoing recovery you're doing great.

Lyn