Possible Longer Term Effects of Head and Neck Cancer Treatment - Loss of Sensitivity in Fingers

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Hi,

Just a simple question to find out if any other Head and Neck cancer survivors have  issues with nerve (touch) sensitivity in their fingers

My history is that I was diagnosed with cancer in my neck lymph nodes in 2016 (No primary site found) and treated with extensive radiation therapy coupled with chemotherapy, followed by a selective neck dissection to remove the remaining cancerous materials from my neck.

Subsequently. I recovered fairly well over the first couple of years, just having some issues with swallowing some solid foods. As time has progressed though I have been diagnosed with an under active thyroid gland  and increased swallowing difficulties, both attributable to the radiation therapy treatment. Also, more recently my swallowing function has become unsafe and I was advised about a year ago not to eat and drink through my mouth and was given a PEG based feeding tube - All the above is a bit of a bind but I have adjusted my life around it.

In parallel though, over a long period of time I have also suffered from nerve issues associated with the neck dissection. Initially these issues were limited to neck pain and a lack of feeling in my left shoulder. However, over time, these have gradually got worse and now affect my left arm and hand to the point where touch sensitivity in my left hand appears to be severely compromised. More worrying than this is the fact that similar issues are now starting to affect my right arm and hand.

I have been talking to my doctor to understand whether it is all connected with long terms effects of the cancer treatment or whether these issues in my hands are due to something else. As yet I have no answers to this question.

I was just wondering if anyone else on here who is suffering from the longer term effects of cancer treatment has any experience of similar long term nerve related issues in their hands.

Thanks for reading

Dave.

  • Hi Dave. So sorry to hear of all the other side effects and how they have piled up.

    It's my understanding that chemo induced peripheral neuropathy occurs during or up to a few months after treatment. What chemo did you have?

    There are other causes so I would urge you to go back to your GP and get a referral to get to the bottom of it.

    You could post your question in Ask a Nurse Just click on the link I've made

    Best wishes

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Good evening, Dave, i have had 3 operations, radio, and chemo, along with a full neck dissection back in 2010, and have not suffered any side effects you have mentioned especially after so many years since your operation/ treatment .  I have had a PEG since then due to my swallowing being damaged after my operations. I would suggest you go back to your Dr as i have not heard of the side effects of losing the sensitivity in your hands. I wish you all the best, take care.

                                                                                Chris 

    Its sometimes not easy but its worth it ! 

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  • Hi Dani and Chris,

    Thanks for your comments. I am exploring all causes through my GP but just wanted to find out if anyone else has actually experienced these issues. From the lack of response I suspect (hope) it is not caused by the radiation treatment. I have a MRI booked next week so hopefully that will find something.

    Dave - keep smiling and take one step at a time

  • Hi Dave sorry I missed your first post. I had chemo and radiotherapy no neck dissection, I ve not had the issues you've mentioned with hands and arms ..

    But please get a referral as I often say not everything can be attributed to cancer we do get other illnesses unrelated. 

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Dave

     I had my first lot of radiotherapy in 2013 to my jaw and then a second lot in 2019 and like Chris do not have any of the side effects you mention. I do hope you can get to the bottom of things soon and get it sorted out.

    Lyn

    Sophie66