Effects of chemo/radiotherapy

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Hi all,so my Husband’s Chemo/radiotherapy was completed on Friday,now I knew it was going to be rough going but never in my wildest dreams did I think it would be so horrendous!! I feel absolutely useless because everything I’m trying to do to help isn’t working.He is barely eating or drinking ,in fact it’s safe to say that over the past 3 days he has consumed 2 of the ensure shakes and roughly 1.5 litres of water.I’ve tried no end of different soft warm/cold foods and fluids,I’m just about getting him to take the magnesium sachets that he was prescribed on Friday.They didn’t fit him with a peg which they said they would,I can see him ending up in hospital at this rate.He is struggling to breathe through the night as his nose is all blocked up and his throat being so dry and sore,ironicaly though he keeps sleep talking despite struggling to in daytime because of his tongue being sore,is that a thing?Its bizzare.He can barely hear at all either,he has a hearing test booked for 5th December,he says his ears are killing when he swallows,I’m really struggling here,any advice as usual would be greatly appreciated xxx

  • any advice as usual would be greatly appreciated xxx

    Hi Anxious. 
    i would get him back to hospital this morning. The next few weeks are going to be a real challenge and if he can’t get pain relief and food plus water down he’s going to be in trouble. The team can fit him with a nasogastric tube in minutes. I had one and it saved my life. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

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  • Hi, I’m new to this app. My husband has advanced prostate cancer and is just about to start 10 cycles of chemo. We’ve no idea what to expect, does anyone have any tips please. Does everyone react differently? 

  • Hi I  only agree with Dani  these next few weeks will continue. Hydration and nutrition are the vital key to recovery.Thr radiotherapy continues ti work. Is he in opiate pain relief ? I had n g tube fitted week 4 if treatment it was my lifesaver. To avoid a&e do you have your cancer nurse direct number or consultant?if not it’s a&e  zI was told fir first year I needed 2500 calories a day and 2/3 litres of water which was true  so fingers x he gets sorted today  

    Ear problems are often associated with chemo  

    good luck 

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Bonjon

    Sorry ti hear about your husband’s diagnosis. Head snd neck is this group our chemo will be different to prostrate there’s a separate group maybe if you put your request there answers will help you l?

    Click link below  best wishes Hazel 

     Prostate cancer forum

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thanks for letting me know.

  • FormerMember
    FormerMember

    Hi

    PEG was a life saver for me, radiotherapy team at Ninewells Dundee recognised the need for me to be admitted on cycle 29 (early June) , straight up to  ward and into bed...spent the next 12 days in hospital trying to stabilise my weight and sort out pain meds....dark days indeed....however things slowly improve...just been to Canary Islands...can now eat chip shop food....and pizzas washed down with 0% alcohol Guinness

    Best of luck

    Peter

  • Good evening  Anxious71, please ask your husband's consultant to either get a PEG fitted or an NG feeding tube, i think the NG tube will be better as it requires no operation so no healing or side effects, its such as shame the PEG was not fitted as it would have avoided all of this. This should be looked into quite urgently otherwise he will, as you say end up in hospital. I wish you and your husband all the best and hope he manages to get back on track. take care.

                                                                                           Chris x   

    Its sometimes not easy but its worth it ! 

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  • Hi Anxious

    You have every reason to be anxious as it sounds as though your husband is really struggling. It would probably work out for the best if he does go to hospital so they can get things sorted out for him. Half way through my radiotherapy I had to go to hospital for similar reasons which led to dehydration. I did not have an NG tube or PEG fitted for my radiotherapy as the radio was not targeted at my throat but my jaw. However it still made my mouth so painful that I had a great deal of difficulty eating. I wish that I had been given an NG tube as it would have made such a difference. The week I had in hospital sorted me out. It is now 4 years since my radio and I am doing well although still have some side effects. I have even just been for a holiday to Tasmania with my husband. (i live in Australia) In the short term things can be very difficult but it is worth it for the long term gain, although that is hard to believe at this stage. Hang in there as it does get better.

    Sending you both best wishes.

    Lyn

    Sophie66

  • Hi Lyn  Welcome back we can’t wait to hear about your trip

    Hugs Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • How are things going? Very stressful for you both. I don’t know what I would have done without the peg.