Dry mouth / saliva sprays...

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Hi, I seem to have increasing problems with dry mouth.  It started off just in the mornings but seems to persist throughout the day now.  I spoke to my GP last week and he prescribed Glandosane (saliva spray). My local pharmacy didn't have it nor could they order it.  Tried a bigger pharmacy and they said it was out of stock and maybe no longer being manufactured (!). They suggested Salivix (sp?). I have contacted my GP with this information but just wondered if anyone is using anything that a) works and b) is readily available... Or is there anything that I can buy over the counter that has worked? I have been in a back & forth with my medical centre since the beginning of November and all the while still having problems with dry mouth. Any advice greatly appreciated... 

  • Hi, there are so many products out there it’s a case of trial and error I think. You can get samples from The Swallows head and neck cancer charity. I’ve  used Bioextra mouthwash and spray for a long time but I do find it stings when my mouth is particularly sore. Saliveze has been more gentle. The gels I find more difficult to spread around my mouth. Xylimelts are good at night. I have aural acupuncture every 4 months, in the ENT dept, and I’m sure this helps. I hope you find a solution that works for you. 

  • I have aural acupuncture every 4 months, in the ENT dept, and I’m sure this helps.

    When I started this I had it every two weeks for six months then monthly

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thanks for all the top tips everyone.  I got Salivix spay from my GP and Oralieve gel from my dentist.  Have upped my game on chewing gum (sugar free) and bought some Pukka teas. Having a call with my Macmillan Nurse this week to discuss holistic needs/solutions so will talk to her about acupuncture too. Thx, Lx

  • Having a call with my Macmillan Nurse this week to discuss holistic needs/solutions so will talk to her about acupuncture too. Thx, Lx

    Don’t be surprised if she doesn’t know. Mine didn’t but my oncologist did. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Ah, thanks for the heads up.  Useful to know... Lx 

  • Hi Liesle

    I use Oralieve, quite often after a drink of water, tea, coffee, beer! when your mouth can just feel really dry. Like you I am not getting on at all with gum but used to like it before (scared my teeth might get pulled out now lol)

    I am unsure if things are getting better or I am just coming to terms with the situation - probably a little from column A & a little from column B

    Good luck & stay strong

  • I am unsure if things are getting better or I am just coming to terms with the situation -

    What are you? 4/5 months out of treatment? 
    There’s plenty of time for things to get better 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge