Hello everyone , so took your advice . I have a dietitian on board now who sent me some things to try to up calorie intake (she said I'm am on her radar ) I've been eating pretty well and weight is slowly going up . I have also got a Councillor on board to help with cognitive therapy ...make me see thinks more positively and face this with a better attitude instead of thinking the worst . So I'm about prepared for this got a humidifier, lots of tissues and a calendar to tick the days off . My 1st meeting with the oncologist is on Tuesday...is there anything I should be asking him , will he give me options because I'm the world's worst for making decisions . How long after seeing the oncologist will things start to move on as at the moment I'm still commuting to my boyfriends to see him as much as I can before treatment starts .
Hi. I wasn’t given any options. I think the options come in with very small and early disease that can be tackled simply with surgery. Once you’re at stage two where I was and stage three where you have lymph node involvement options are few.
I had six weeks radiotherapy and avoided chemo as I had no nodes up. I know Hazel had seven nodes affected but a neck dissection wasn’t offered when others with fewer nodes affected did have a dissection.
The best thing is to see what’s discussed first. There will be a plenty of time to arrive at a decision before treatment starts.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
How long after seeing the oncologist will things start to move on
It depends where you are along the road. What have you had done so far? Thus us where putting some details in your profile helps. Then you don’t have to keep repeating yourself. If you have time it would be useful
From seeing oncologist to sign consent forms through to planning CT with mask making, chest X-ray and meeting dieticians and speech therapist to starting treatment was around six weeks for me. Others are quicker
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Draper
So glad to see you are getting things sorted with your issues and appears everything is going in the right direction, unfortunately without knowing what your Cancer is it’s difficult to decide how I can help, what I did with particularly my second cancer was I wrote down all my questions and thoughts as they came into my head and found this helped along the way. I also can’t see what stage you are at with the journey so again the time between seeing the Oncologist and treatment starting is difficult to help with, have you had scans etc and all of many pre treatment tests as that is the part that gets to us the waiting for results and meeting with the whole team to decide the best treatment plan. You appear to have been given plenty of various help so you would be aware of the Oncology Nurse Team, they become part of your care team when the treatment plan starts.
Wish you all good going and do come back if you want more support
Take care
Tony
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Voicebox Cancer- Laryngectomy 2020 and Oesophagus survivor 2022
Adminitrative Assistant at Frimley Park Hospital, Cancer Support Hub
Hello dani , I have added information on my bio , wasn't sure how to do it in early stages of joining , not been on forums much
You’ve done fine. Thank you.
You’ve said you are getting chemoradiation so it looks like any surgery is not being planned.
When you see your oncologist you’ll have your treatment explained. You can ask for a timeline. There will be lots to do but they will get a move on.
You’ll get six or seven weeks of RT. Chemo can be split in to two or three sessions or weekly. These are long days. If you have somebody to drive you to hospital that’s fine but if not then ask about transport. Ask fir eyeholes to be cut in your mask. It helps especially if you might feel a little claustrophobic and helpless under treatment.
We can give you more advice when you know more details. There will be plenty of time between your appointment and start if treatment.
Good luck.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hello Draper, just popping up to say welcome and good luck. It's nearly a year since i finished 6 weeks chemo-radiotherapy for T4 base of tongue cancer and I'm fine now (touch wood). This forum is brilliant for info & support so keep in touch and ask anything you like x
September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 2 years all clear. See my profile for longer story
Hi. From biopsy to treatment stating i was 3 weeks Surgery wasn’t an option as my lymph nodes were too,close to spinal,cord. But the chemo radiation is the good standard so don’t worry. Once yiuve seen oncology everyth7ng falls into place. I had no choice my treatment plan was presented to me
Glad youre reaching out to people it helps it’s never has bad as yiu fear as long as you listen to medical team and keep them in the loop with how you are feeling
Keep in touch
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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