I've been told that before treatment starts I'd be having a peg tube fitted . Is this something I should just go with the flow with and have it done or wait it out and see how I get on and if need be have the nasal one fitted when absolutely needed , do I have a choice .
Hi Draper, I had a RIG fitted, which is much the same as a PEG, I was 100% reliant on it 3 weeks into my treatment. I would always advise anyone to have a PEG or a RIG, if offered one. Many on this forum have had one and been pleased that they did. If eating becomes difficult during your treatment, the feeding tube will take the worry of not eating away. The way I look at it is, it's best to have it and not need it, than need it and not have it. All the best with your treatment.
Regards Ray.
Hi. I had no choice PEGs weren’t fitted but I was offered ab NG tube if I needed it which I did week 4. It took seconds to fit, didn’t hurt and didn’t take weeks to settle. I’m forever grateful that was the case. I had it in for 8 weeks and even managed to be pump fed overnight. I took it out at home. Just pulled it out of my nose and threw it in the bin.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Draper After going through the treatment I would advise getting a peg tube fitted . I was offered a peg tube at first then due to medical issues that changed. I eventually got admitted to hospital due to a blood cell issues , This might have been avoided if I had had a peg fitted. My main issues everyday were taking these pills that I had to grind done and try and swallow , even drinking water can be an issue . I eventually got a tube fitted down the nose and would feed me while asleep . You will avoid all this with a peg I was totally against the idea but it would have made the treatment much easier not having to worry about food and medication which was a nightmare , All the best Minmax
do I have a choice .
Have you been offered a choice?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi. I was told before treatment that I would probably need some sort of feeding tube. I hated the idea. They didn't do anything prior to treatment and it was never mentioned again. Perhaps I was lucky but, I also only lost about 6lbs during my treatment, so that could have been a factor. It was a little rollercoaster eating at times but I found tricks to keep my weight up., hard to say. Perhaps check with your team as to whether you have a choice. Good luck
Tricia
I'm only small I'm 4ft 10 and weigh just over 7st I did weigh 8st about 7 weeks ago but since all stress and worry I lost weight . I'm currently eating as much as I can to put weight on but I struggle putting weight on , a few weeks before I started feeling ill I noticed I was putting weight on which for me is very unusual , I struggle with ibs so didn't know if the peg would effect it
They said I would be having a peg fitted but didn't know if I had the choice
Then I suspect your choice is to have one fitted or not. Going by what most people who get into trouble have reported here if they don’t have a peg to start with they are fitted mid treatment during a hospital stay. I must say I would hate that.
My advice would be to go for it even if you don’t have to use it. Some people manage to eat all the way through but very few. You’re already very slight and risk being hospitalised for some time if you lose too much weight.
I note in another reply you have IBS. Do your dieticians know that? You may not get on well with Fortisips or Ensures and there are alternatives
xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007