Hi all,it’s been a few weeks since I last posted on here about my Husbands diagnosis,I feel like my life has been tipped upside down and I’m feeling very overwhelmed.So after biopsy and mri it has been confirmed that my husband has an aggressive sinonasal tumour stage 4.He has a pet scan today(which should have been last week but there was an error made) then we see his oncologist on Monday to discuss treatment plan,it was originally hoped he could have surgery in Manchester but they have said it’s too dangerous because of where it has spread to.We have been told the treatment will be chemo/radiotherapy which will do 1 of 3 things,shrink it,stop it or nothing at all,I’m literally petrified for my poor Husband,I can’t bear the thought of him being in so much pain and going through the ordeal he is about to but what scares me the most is the outcome,I’m doing my best to stay positive but can’t help but wonder what our future holds.So I’m wondering if any of you know what the best case scenario might be if it shrinks it?Will we have years ahead of us?Does it just stay there waiting to grow again,I really don’t know,can anyone help me please,I’m not doing too great xx
So sorry Anxious71
It could be any of these things. That's what your husband's oncologist has said. It's heartbreaking living on the edge like this but it's a case of waiting I'm afraid. There is help though. Tackle your GP for something at least to make you sleep better or even some antidepressants, Because you need to look after yourself too. Your husband has a medical team to look after him.
Have you a Maggie's near you https://www.maggies.org/ You could drop in for a chat with a counsellor or even just for a cup of tea and a chat. https://theswallows.org.uk/ have very active carer support and their phone line is available 24/7 answered by a real person. Don't forget Macmillan. The support line number is at the bottom of my post. Talk to somebody skilled in helping cancer patients and their family, don't bottle up your feelings.
Don't forget. Chemoradiation is not pleasant. It's downright hard but side effects can be mitigated to make your husband's life easier during treatment and for me it was definitely worth trying. Although my cancer is different there was never any doubt in my mind that I wouldn't at least have a go.
Hugs
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
It’s the despair of not knowing what’s going to happen and imagining all sorts of Hell. Trust his team. They will do the very best they can. Come on here whenever you want. Rant, rave, ask questions. There’s always somebody around. Xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Good evening Anxious71, i know its not easy when you are told they cannot do surgery but there are many people who had radio and chemotherapy with positive results, sometimes if they manage to shrink the tumour enough they might reconsider surgery. Most of us on here have had radio and chemo and are still here to tell the tale so its not all bad news, sometimes its just the thoughts that go through our minds that paint a worrying picture so as Dani suggested have a word with your Dr as he/she should be able to help, also your husbands consultant will explain what their plan is once they see the scan results giving them a clearer picture. Don't be afraid to ask for help as there are specially trained people who will help you get through this difficult period. Best wishes to you and your husband, take care.
Chris xx
Its sometimes not easy but its worth it !
