Hi again all,
My husband will be undergoing 35 rounds(?) of radiotherapy for T4 N2b M0 base of the tongue cancer.
Regards radiotherapy - what do you know now that you wish you knew then?
e.g I hadn’t realised radiation can/will burn the skin on the way in and out
thank you in advance x
I had terrible constipation a couple of times too, despite mutiple Laxido and Ducosate. Once I had to go to hospital for an enema. The next time, I felt I couldn't walk with this feeling of a bowling ball sitting in there and - apologies for being disgusting - I used my latex-gloved finger to break it up and hook it out. I hope you never need this useful tip!
September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 3 years all clear. See my profile for longer story
Fortunately I didnt suffer badly from constipa†ion but I knew a bloke who died from being impacted ,
Horrendous. My team were really on my case and I got interrogated about my bowel habits before being asked about the treatment and how I felt!
Laxido was in my first carrier bag of meds.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I only knew that this could happen as i remember when Elvis died they said his death could have been linked to this, yet its never explained by drs or dieticians. I take it every day otherwise it creeps up on me and its not very pleasant. Take care everyone.
Chris x
Hi All, I too suffered with dreadful constipation when on RT/CT and being RIG tube fed and also ended up in A+E one night with impaction. Sitting in the waiting area for 6 hours when into my 6th week of treatment was an horrendous experience.
I am now 20 months post treatment and feeling well however I don’t think that my bowel habits ever fully recovered to normal ( sorry if anyone is eating). There has been a lot of focus on gut health and “the micro biome” lately and foods that encourage the healthy gut bacteria, in particular fermented foods and probiotics. I have tried to increase my consumption of these and it seems that things have improved although this may be due to normal recovery.
I stress that I am NOT advocating anything here but just reflecting on my experience.
All the best for Mr Pook’s treatment.
- John
Hi JohnK55 That sounds bad but great that you are on the mend , Loads of oats will help . Something I have sussed is it is so easy for things to spiral quickly out of control if you dont keep on the ball. I have been rough for nearly 2 weeks from a lung infection or the like but got some antibiotics and on the mend now Thank God All the Best Regards Minmax
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007