Hi
just found out dad will have 30 days of radiotherapy and chemo after this second cycle of chemotherapy. Any tips on how I can support him/ help him manage side effects?
Hi Brummie Gurl. Just remember we don’t get all the side effects. I was fine fir first 2 weeks ir si then gradually the 3 rd week swallow and ulcers started. Make sure he tells the team as soon as he has any issues. If he has a peg fitted when ge needs ti use it make sure he does Plus keep on top of medication. Other than that rsje it one day at a time.
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
The main side effects are nausea and pain. His chemotherapy team will give him anti sickness meds. If they are not working make sure he tells his radiographers who he will see every day. There is a plethora of antiemetics and one will suit. Similarly with pain. Analgesia is best taken by the clock so you could make a list to tick off including all the mouthwashes he will have. It’s a tough treatment and he’ll get tired. Sit with him, watch rubbish tele with him, just be with him but back off if he needs peace and quiet. Get out into the fresh air with him for a few minutes every day. Run errands, do practical stuff, like order a humidifier for his bedroom to keep the air moist. It will help with his dry mouth. It’s basically emotional support.
Others will no doubt come up with more tips.
Best wishes
oh….. ask him what help he’d like too
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Good evening BrummieGirl, its so hard to say what side effects he will get and how bad they could be, i personally did not suffer that badly with fatigue and sore skin in the area that was treated, he might get ulcers inside his mouth again depending what area is going to be treated. The good thing is that it's all gradual starting off ok but day by day week by week the effects will start to set in, its a gradual change making coping and recovery easier or less noticeable to deal with. Its always worth asking what lotions, creams, or mouth sprays are available all i used was aqueous cream but that was back in 2008. Wishing your dad well for his treatment, take care.
Chris x
Good morning BrummieGirl Hazel has said it all.My main side effects were lack of taste, no saliva, no appetite and very important to tell the team everything. Radiotherapists your Dad will see every day and in my case the specialist nurses (SALT, Dietician, Physio, McMillan nurses) regularly, they knew how I would feel 2 weeks before I did. It's not an easy journey but everyone on this forum has got through it and before he knows it your Dad will be ringing the bell.
Ivan
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