White spots on my Tongue

Hi Lyn, I am now 5 years and 2 months, post treatment, and my tongue still has a coating on it. My consultant told me more or less, what yours said, it's a result of RT. Hope you are keeping well.

Regards Ray.

Hi Lyn

I don't have white spot issue on my tongue but I can suffer with food residue coating my tongue.  I can suffer with dry tongue too. What I do find useful after my shakes and soups is to drink a clear warm fluid  afterwards such as a  shop bought boxed herbal tea, or green tea,  any tea nice tasting to me, to wash it down when I notice my tongue getting food residue on it. Apologies if you have tried this. I just thought I  would respond as your consultant thinks it could be down to your pureed diet contributing to your problem as well as the  other things, and any little bit of info could help.

I do hope you can improve your problem.

Best wishes 

NIcky

Sophie66 said:

My surgeon does not have any suggestions except to use a tongue scraper.

Hi Lyn. It's a difficult one. Lack of saliva and chewing hard food to scrape the tongue normally. It's the physical act that's missing. I fear a tongue scraper is the only solution. Might I suggest that you use a copper one. It has bactericidal properties and does a better job

Hi Lyn I’m  totally  the opposite my tongue is always bright red no bacteria in it at all. It’s strange how different we all are. Sadly I think like Dani says  it’s a tongue scraper.  Have you seen surgeon yet ? 
hugs Hazel xx

Good evening Lyn, my gums and a bit of my tongue is white where they did surgery and radiotherapy even my dentist asked why, mine is permanent and has not caused me any issues, maybe yours is similar, I make sure my mouth and teeth are as clean as possible by brushing and using mouthwash, have you tried foam mouth swabs during the day as they are a lot kinder and gentler. Wishing you all the best, take care.

                                                                          Chris x

chris2012 said:

foam mouth swabs

I’ve never heard of these. Thanks for posting the tip. 

Hi Ray

Thanks for the feedback. I'm glad I'm not the only one with this issue. I now realise this is my 'new normal'  and won't worry so much about trying to clear it up.

I am keeping very well and back into life and enjoying it. Am still waiting for my reconstruction surgery but getting on with things in the meantime.

Hope you are keeping well too.

Lyn

Hi Nicky

Thanks so much for the feedback. Yes I definitely have a food residue issue as well. I have not tried a herbal tea so will try and find one that I like and give it a go. I have a lot of soup and milk based drinks as well as Sustagen,pureed fruit and Weet bix so they are a bit sticky.

Lyn

Hi Dani

Thanks for the feedback about the tongue scraper. I have ordered one on EBay and will give it a go. The copper ones have good write ups about their benefits which I did not know anything about. I'm always learning something from this forum.

Thanks again

Lyn

Hi Hazel

Yes funny isn’t it that we can all be so different. Thank goodness that usually someone on the forum has experienced something similar and can give some input.

I had a phone consult with my maxiofacial surgeon a couple of weeks ago and think I may have already mentioned that he and the prosthodontist are still designing the prosthesis that is to replace the teeth in my upper jaw. Although with no upper jaw they are going to attach it to implants in my cheek bones. They are still working on it and when the design is complete it is to be made in Germany and will take 2 months to make. Patience is a virtue.

Lyn