Radiotherapy and more

Former Member
Former Member
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Thought I'd start a new thread. Here I am 6 weeks post surgery.  I've had my " bone flap" (what a horrible medical term). I have a new jaw from my fibia. I had cancer in chin and floor of mouth.

I've had my first radiotherapy on bottom jaw/ mouth. It was OK. 

The night before I notice my neck scar in places was sorer than usual and blistering. I got it under control and thought nothing of it. That was until I told the surgical team. Now I'm back to see them tomorrow. Something tells me the squamous cell carcinoma is more widespread than initially thought? 

I can't help but worry. I'm on my own with my two boys who are 20 and 24 years old. I do worry about them coping with this. 

  • Former Member
    Former Member in reply to Beesuit

    Yep it's thrush and I've got the right meds....thanks....that list.....brilliant idea....I'll do that when I get back from Velindre today

    Thanks again Smiley x

  • Yep it's thrush

    Oh well...at least you have the right stuff. Did they give you one or two weeks worth?

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Former Member
    Former Member in reply to Beesuit

    7 days apparently. My Saliva dried up from my operation 9 weeks ago and radiotherapy has compounded it by the looks. 

    Funny day today. Hospital transport has a new computer system to track its drivers....few clichés.....I've been waiting 4 hours for a lift home!!! See how can you take your meds stuck in a waiting room!! Luckily got me mouthwash on me. 

  • Good luck. I used to travel with meds and mouthwash having learned that you just can’t get pain relief without a doctor signing it off 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge