Advice please - how to get off NG tube, & how soon

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Hello all

2 weeks ago I finished 6 weeks of daily radiotherapy & weekly chemo, and was given an NG tube weeks as I was suffering badly with nausea & vomiting - unable to keep anything down. I haven't been eating at all for 2 weeks, just having overnight feed & some Fortisips - everything through the tube.

I'm on metoclopramide, ondansetron & levomepromazine for the sickness, carbocisteine & nebuliser for the mucus. Also some morphine for pain, plus laxatives, although the pain is only when I swallow or try to speak too much which I am not doing.  I am taking sips of water, and trying to keep up my swallowing exercises as I know the muscles can become rigid in recovery if you don't exercise them.

My question is, what should I do to try and get back to eating, and how soon?  I'm terrified of triggering more vomiting, which eating tends to do. My partner is keen to cook me special food though I keep telling him just bland and liquid-y.  Any ideas? I'm not keen on sweet creamy stuff unfortunately. 

  • Hi. I had my NG tube in fir 5 weeks after treatment so those two weeks of yours is still early days. 
    You could try swallowing your Fortisips or Ensures that you’re taking by tube. In no particular order You could also try poached egg, scrambled egg with Philly mixed in to make them softer. Tinned peaches. Ready brek with cream mixed in ( I think you have to try to forget that you don’t like creamy). Custard. Ice cream. Greek youghurt. Well cooked pasta in cheese sauce … even tinned macaroni cheese is quite easy. 
    Soup…. any but tomato. 
    Im sure others will be along with more suggestions 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Slowly slowly does it. If you fail at something try again a week later. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi yes agree with Dani I was 3 weeks but I had started ti drink ensures orally. I continued for weeks to get at least 50% of my nutrition from ensures. Gradually introducing softer foods. Yep tell  hubby to wait a while . I threw away as much food as I ate. If u can’t eat something leave it a week or so. 
    they won’t take n g tube out until you’ve showed them you can manage orally. Don’t be in a rush you’ll get there slowly slowly. It’s a marathon not a sprint ,

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • It’s very early days for you and unfortunately the nausea and vomiting doesn’t help with the next stage of trying to eat. I stopped the Fortisips after 3 weeks as they made me very sick and started an eating regime just to get some food inside me. I found mushy cereal with milk and sugar before I got out of bed helped with the nausea and just like Hazel and Dani said, chicken soup at lunchtime, poached eggs for dinner, even now 12 weeks post treatment I still fall back on my eating regime on days when I don’t feel like eating or my throat hurts. Like you I struggle with sweet creamy foods so soup and eggs , tinned macaroni cheese , mashed potato and gravy all worked , some days better than others. It’s very much trial an error, one day I could eat a certain food, the next day it would go in the bin. It can at times be disheartening but we all go through this and it does get better. Good luck with it all. 

    Debbie x 

  • Thank you all very much for those helpful replies x

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 2 years all clear. See my profile for longer story

  • Hi Cat SW9,

    Congratulations for getting through your treatment as we all know how tough it is. I was advised that those first few weeks following treatment would be horrible and they were. I also had dreadful nausea and relied on Fortisips via my RIG tube for several more weeks only gradually introducing solid food. Taste and texture will still be awful however much of what has already been described seems to work for most. Weekabix in warm milk, mashed potato with cheese, chicken soup and milky drinks were my initial choices. Things should gradually improve although, even now, 15 months post treatment there are some things I can still not tolerate but thankfully enough that I can eat and enjoy.

    All the best with your recovery.

     

    • John