Mums treatment side effects and I’m falling apart slowly

Hi. 
Sorry but all this is normal. 
I’m presuming your mum doesn’t have a feeding tube 

Ask if she can have an NG tomorrow and make sure her pain is addressed properly. She may be on her last week but the radiation continues to work for another two or three weeks. 
A nebuliser would help with the mucous.
Your GP might help with a district nurse regarding giving you a break but I wouldn’t bet on it I’m afraid. 
Have a word with your mum’s CNS tomorrow to see if the hospital can offer something. 

My hubby did 10 weeks of treatment, his last as 1 month ago- and I was so all at sea with it.  I don't have any advice useful to you, but am sure someone wil be along in a minute who has!!!  All I can say is that I know Exactly how scared and helpless you'll be feeling, and some times so CROSS at the world!!   You're doing your best, you're amazing, and I just hope reading thta makes you feel a smidgen better.  I will get out of the way now, making way for the more informed folks!!!  Hang on in there. x

Thanks so much I have got her a nebuliser now so hoping that helps. I’m going to speak Cns as you advise see their thoughts. She doesn’t have a feeding tube at moment xx

Thank you that’s good to know I’m not alone in this feeling it had helped so thank you again x I feel so frustrated too and I never feel that way :-( normally so able to ride it out when I get this way but I can’t exercise to work it off which is normally my way! 

Hello Cakegirl, as a fellow wife I feel for you. I had to watch my husband having to go through this. And it was one of the hardest things ,seeing a loved one like this is heartbreaking. At his worst he could only sleep upright,staying downstairs on the couch,with his legs resting on a puff. I slept on the floor by his feet. He constantly caughing up mucus,always dehydrated,so I had to 'water' him through his PEG,or fed him through the night. I was counting the days for him getting better. And slowly we got there. So persevere and stay strong. As to getting a MacMillan nurse,we popped into one of their offices to get some information just in case, but we managed by ourselves at the end. All the best Mel x

Hi I’ve never known MacMillan come and give you a break sorry. You could try G p or social services if they can help but I wouldn’t hold my breath.maybe age  concern 

If you’re apprehensive about driving just set off in plenty of time plan your parking as we all know hospital sitting can stress you out. Do like Dani says re ng feeding tube if your mums not got a feeding tube. Once last treatments over you’re left to your own devices fur a while it doesn’t stop once last treatments over it continues to work for  a good few weeks. Just trying to prepare you. If you’ve other family or mins friends who could help now’s the time to ask them. 
be thinking if you tomorrow just take  your time with the drive xx

Hazel . 

Hi Hazel thanks for your support and info. Mum is in denial about the weeks after treatment but I know it will get worse. I’m trying get couple more weeks off work but at least we won’t have the daily train to the hospital as she had a wheelchair too I navigate it all with alone. Good job I try to keep fit I’m 5ft and sheer bloody mindedness determination is all I have at the moment!

i will leave lots of time so mum hopefully I can drop her outside and find a space somewhere even if it’s a walk away for me

Does it get better after a couple of weeks? 
social services 3 weeks since I got in touch and doctor did have not contacted me :-( x 

Hi I liken recovery to a marathon rather than a sprint. We all react differently I was lucky I was swallowing sufficiently at 3 weeks post treatment not to heed my feeding tube. The first 2 weeks I slept fed oral care repeat indolent go anywhere ie do anything other than above plus a little bit of tv. Count be bothered to read etc. 

Take it steady tomorrow. 
hazel xx