Acupuncture

Hi Debbie. Auricular acupuncture is what you  need to look for. I’m sure it kick started my saliva inti actin.  Would say don’t don’t loose hope even now 4 years post I still notice small improvements. Good luck with acupuncture took me a whije to find one who coujd do it. 
Hazel x

Hi Hazel, thank you for that advice. I know I said this before but I have found your blog invaluable. I’ll look into Auricular Acupuncture.

Debbie xx

Bless you glad it was useful will be updating soon. Just on way back from our recent trip to Spain. One life live it x

Hazel 

Hi Debbie. It certainly helped me. 
Have a look here 

https://todaymycoffeetasteslikechristmasincostarica.com/2019/12/21/acupuncture-the-experiment-has-started/

and here 

todaymycoffeetasteslikechristmasincostarica.com/.../

Hi Dani, thank you for sending me the links to your blogs, I now remember reading both yours and Hazels’s blogs which triggered my thoughts about Acupuncture. I now know what to ask when I look at the Acupuncturists near me in Kent. Did it help with your taste buds? Mine are so hit and miss, although I think there is a very tiny improvement in the past couple of weeks. 

Debbie xx

Hi Debbie. 12 weeks post treatment is still really early days. I could taste very little then. I wasn’t happy with my taste till I was at a year. In the intervening period I had times when taste was pants and times when it seemed to be moving forward. I could tell what I was eating but that was all. One of the most frustrating things was to get a good taste hit with the first mouthful then nothing after that. That seems to be a common thing. 
Improvements continued for a long time and I’m pretty happy with taste and saliva now. 

If you eat something you always loved and it’s horrid put it away for a few months and try again. It took me a year to love Baileys and avocado ( not at the same time ) again 
Don’t  get disheartened. It’s a marathon. 
You’ll get there. 

Hi Debbie Had Dani says it’s a marathon not a sprint. Take it day by day sone days 2 forwards and one back but you’ll get there xx

Hazel xx

Hi Dani, spot on with the taste situation. First and second mouthfuls are ok and then tasteless. I had felt quite despondent thinking that this might be it! It’s quite a relief to hear things shouldmprove. What I’ve noticed is that recovery isn’t consistent, some days it feels like it’s going well and then bang, fatigue, nausea and no appetite. I used to love avocados but they are a definite no no lol. Guiness seems to work though!! Just an ongoing process from reading yours and Hazels blogs. Thank you for the advice.

Debbie xx

Hello Debbie

I mirror Dani and Hazels comments. It has been a 3 year rollercoaster. After chemo/radio for neck lump and SCC possibly in tonsil (never found primary), I went through bland/bitter/tasteless/disgusting/ one minute great-next day not. Texture, how hot/cold all affected what I could eat drink. Started acupuncture in december about a year after finishing treatment as I had read about it on this forum. Offered to me for free from my local Marsden (Sutton). I swear it did make a difference, possibly not massive but felt like it. I kept a food diary and if I look back to the miniscule amounts I ate and what I can achieve now-it's pretty good. I had 10 sessions one a month and then Covid got in the way. I think in year 2 to 3 has been my biggest jump in eating from a saliva point of view and coping with textures. There are still some things I struggle with (like I loved chicken fillets but, now go for thigh meat for higher fat content/less dry) and I still have good and not so great days and improvements, Best of all, I don't wake up dreading what food to avoid for the day and can plan, so psychologically it has been a boost. As Dani says, 12 weeks is early days and so frustrating. Keep revisiting foods. I reckon hubby has put on a stone from eating stuff I can't -lol. Find yourself a good Auricular practitioner and fingers crossed it kick starts all those tiny saliva glands for you. Good luck.

Tricia

Hi Tricia how are you.? Just laughed at the hubby statement mine did the same hates waste especially food so ate mine. Yes big leaps in year 2/3 even now I’m still getting them. Today on way back from Spain had pisto with pimenton if you would have said  that even last year it would have been  a big NO. 
was a Spanish truck stop type of place rustic 

Just to show life does go on and often tastes improve 

Hugs Hazel x