I feel really ashamed writing this, as reading others posts, I know how lucky I have been.I had two operations to remove my tonsils and base of my tongue, second operation was to remove a little more and neck dissection. I didn’t need any further treatment and my last MRI in August was clear. I am due to see my Consultant in October. Today when shining in a torch to look at my scar tissue It is still white but has flecks of blood in it. Then at the bottom I noticed a lump the same colour growing outwards. So I am in a panic that it’s back. My husband is adamant that I had a little a little there and it’s granulated tissue where the hole as closed up. I really cannot remember a joke being there, and I’m in a panic. Do you think it will wait another 3 weeks before I see him. I really am sorry for writing again.
Debbie. Stop and breathe. We all feel like this and understand. So don’t apologise. I’ve had two appointments out of sync because I was worried about something. I must have the best Onc in the world as he has seen me straight away and while reassuring me has said he’d rather see nothing or something benign than another cancer.
I would be ok with a three week wait but why don’t you contact your CNS and ask if you can be seen earlier.
This cancer is pretty curable and recurrence almost unheard of in the first year so hold on to that.
Let us know how you get on.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Please do not apologise Debbie, most of us have been there and the slightest change, lump or ache starts to ring alarm bells but in many cases are false alarms. I think there is so much misinformation on Google causing a lot of anxiety and stress for people, i would suggest you contact one of your team for peace of mind, they would rather you do this rather than wait until your next appointment.I know how you must be feeling due to previous dealings with head and neck cancers myself. Write as much as you like as that's what we are here for. Wishing you all the best, take care.
Chris x
Debbie don't panic and don't apologise for using this forum as it is designed to be used. Like Dani and Chris my advice is to call your CNS, tell them your concerns and ask for an earlier appointment. Each time I've done that they have got me in quickly and reassured me there is nothing of concern. Fingers crossed all is OK.
Thank you a really big thank you
Debbie….. huge hugs!
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Debbie can only agree give c n s s ring. I was pooped back in pathway by my dentist in May she saw something near my radiated side wasn’t happy with it. I was fine I wasn’t concerned but as she said would be remiss if she didn’t send me to be seen. I was seen it was nothing but always better to be checked It was food trauma note to self don’t eat a ryvita day before dental appointment. Ps we’re riding our bikes 33 degrees in Murcia. One life live it. Pop on here any time we’re all here for each other.
Rememberc reoccurrence s are extremely rare.
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Hazel, I will definitely ring tomorrow. So jealous would love to be in Spain riding our bikes. Have a fab time
Hi Debbie your turn will come. Don’t stress keep us in loop.
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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