Lump near scar tissue

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I feel really ashamed writing this, as reading others posts, I know how lucky I have been.I had  two operations to remove my tonsils and base of my tongue, second operation was to remove a little more and neck dissection. I didn’t need any further treatment and my last MRI in August  was clear. I am due to see my Consultant in October. Today when shining in a torch to look at my scar tissue   It is still white but has flecks of blood in it. Then at the bottom I noticed a lump the same colour growing outwards. So I am in a panic that it’s back. My husband is adamant that I had a little a little there and it’s granulated tissue where the hole as closed up. I really cannot remember a joke being there, and I’m in a panic. Do you think it will wait another 3 weeks before I see him. I really am sorry for writing again. 

  • Debbie. Stop and breathe. We all feel like this and understand. So don’t apologise. I’ve had two appointments out of sync because I was worried about something. I must have the best Onc in the world as he has seen me straight away and while reassuring me has said he’d rather see nothing or something benign than another cancer. 
    I would be ok with a three week wait but why don’t you contact your CNS and ask if you can be seen earlier. 
    This cancer is pretty curable and recurrence almost unheard of in the first year so hold on to that. 
    Let us know how you get on. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Please do not apologise Debbie, most of us have been there and the slightest change, lump or ache starts to ring alarm bells but in many cases are false alarms. I think there is so much misinformation on Google causing a lot of anxiety and stress for people, i would suggest you contact one of your team for peace of mind, they would rather you do this rather than wait until your next appointment.I know how you must be feeling due to previous dealings with head and neck cancers myself. Write as much as you like as that's what we are here for. Wishing you all the best, take care.

                                                                             Chris x

    Its sometimes not easy but its worth it ! 

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  • Debbie don't panic and don't apologise for using this forum as it is designed to be used.  Like Dani and Chris my advice is to call your CNS, tell them your concerns and ask for an earlier appointment. Each time I've done that they have got me in quickly and reassured me there is nothing of concern.   Fingers crossed all is OK.

    Peter
    See my profile for more details of my convoluted journey
  • Thank you Dani

    As always you give good advice. I will ring tomorrow, lately I seem to be constantly worrying Then  I come on here and you put everything into perspective .  Thank you a really big thank you

  • Hi Chris

    cant thank you and  Dani enough. At the moment any little ache, lump, and I’m panicking it’s back. Then I come on here and the support is brilliant, I am very grateful 

  • Thank you a really big thank you

    Debbie….. huge hugs! 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Debbie can only agree give c n s s ring. I was pooped back in pathway  by my dentist in May she saw something near my radiated side wasn’t happy with it. I was fine I wasn’t concerned but as she said would be remiss if she didn’t send me to be seen. I was seen it was nothing but always better to be checked   It was food trauma note to self don’t eat a ryvita day before dental appointment. Ps we’re riding our bikes 33 degrees in Murcia. One life live it. Pop on here any time we’re all here for each other. 
    Rememberc reoccurrence s are extremely rare. 
    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Hazel, I will definitely ring tomorrow. So jealous would love to be in Spain riding our bikes. Have a fab time 

  • Hi Debbie your turn  will come. Don’t stress keep us in loop. 
    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/