Treatment almost finished

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Hi all 

I have external beam radiotherapy for thyroid cancer - 35 sessions altogether, 8 left.

I am on paracetamol and oramorph 4 hourly due to pain in my throat but works quite OK. 

I am on ensures only as no saliva - my mouth cannot process any food for that reason. 

No mouth ulcers or pain in the mouth, skin on the neck a bit red but only just.

(Might be my age and skin as I'm 41) 

I was just wondering : 

Is me thinking to go back to work 3 weeks after ending the treatment rather optimistic? 

How quickly after the end of the treatment can I expect for my throat to start healing? And the taste to start to go back to normal?

(I know we are all different but would love to hear other's stories). 

Thank you. 

  • Good evening Izzy,well done to have come this far. I can only tell you of my hubbies journey,as you said,every one heals differently. He is now 17+ mths post treatment. After finishing treatment he was reliant on his PEG for about another 14 wks,when  he was slowly able to swallow softish food and liquids.He still experimenting with food,some still don't taste the same,some he can't even tolerate. He is still having a dry mouth/throat. A bottle of water is always close by. As to going back to work, I would say listen to your body.  My husbands job,in telecommunications ,requires him to do a lot of driving,and at the time still being fatigued, he found himself able to go back to work at about 5mths later,part days and gradually back to full time. He is a lot better now,but his scares on his neck,the caughing and sneezing is a constant reminder of what he's been through, but I couldn't think about the alternative. So don't expect miracles, listen to your body and take your time. Hope this helps. All the best for the rest of your journey, hugs,fellow wife Mel x

  • Hi Izzy

    I started to not feel like death at around six weeks

    By 12 weeks I had turned a corner and was eating some solid food

    By six months I was feeling more my old self 

    Taste slowly started getting better at 12 weeks and improved for the next 18 months

    RT damage takes a long time to heal, I did have mouth as well as throat ulcers and the one large one on my tongue persisted for months. Another problem I had was the fatigue that RT causes. I suffered with that for a year. It came in waves and poleaxed me so much I just had to rest

    The dry mouth persists, with salivary function around 50% of what it was...worse at night. It's manageable 

    I am retired but wouldn't even have considered work for six months 

    Was 68 when I finished so much older than you

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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