3 weeks after treatment, heavy mucus

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Hi  All you lovely people

I got diagnosed with tonsil primary and lymph node secondary cancer at the beginning of June (HPV).I I am aged 55.

I have completed 30 sessions of radiotherapy and 3 out of 6 chemo. However I spent the last 2 weeks in hospital.

I finished my treatment on the 26th July, almost 3 weeks ago. I had a rig fitted about 3 1/2 weeks ago. I am managing this really well having all my meds and fortisips through it. At the moment I can't have anything via my mouth.

I have an appointment to return to the hospital on the the 2nd September, but I have a few concerns, these maybe normal but causing me a lot of worry 

The mucus seems to be increasing to constant, this is causing me to cough and causing pain in my back if my mouth. On many occasions, I end up being sick. Is it normal to have constant mucus? I am taking 1 sachet of Carbocisieine 3 times a day, but doesn't help.

Meds 

I take the following meds, 

Zomorph

Carbocisieine

Metoclopramide 

Omeprazole

Paracetamol

Morphine

When do people normally come off their meds, I can't find anything in the paperwork I have been given.

Prior to being ill I was fit and healthy, I now get worn out after having a shower. I am being sick at least once a day. Is this normal at this stage

I am still losing weight, I have lost about 2 1/2 stone (to be honest I needed to lose 1 stone), But it's still coming off. 

I maybe worrying about nothing, but I am caring for my partner who had 2 strokes just before I got ill and I want to make sure I am doing everything possible to enable a quick recovery to care for my partner. The care my partner needs is supervision not physical.

Thanks in advance 

Sue x

  • Hi Sue and welcome. Well done on getting through the treatment. Recovery is different for all of us but I’m sure you realise that it’s a slow day by day plod with some steps backward. 
    The fatigue is caused by the radiation and only slowly gets better. Some people have taken afternoon naps for months to cope. I managed without but I would occasionally be poleaxed by a wave of it. 
    I was fed via NG tube for six weeks after treatment end and gradually weaned myself off the same sort of analgesia regime you are on, being pain killer free at 12 weeks. 
    As for the mucous I found steaming my head over hot water helped a little but the best thing was to take frequent sips of water through the day. I did a lot of spitting too. The mucous went as quickly as it came though the trade off is a dry mouth. 
    Hope this helps. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Sue Welcome for me I’m Hazel almost 4 years post radiotherapy and chemo for tonsil cancer I to had the mucus for quite a while it was around about week nine I was still taking carbustune it really didn’t help much ti be honest it went as quickly as it came.Although dry mouth replaced ut. As for radiation fatigue I was one of the ones who had a 20 minute power nap every lunchtime or afternoon for at least two years we are all different and some don’t take as long something take longer the only thing I found is that I couldn’t ignore it and try and fight through it I was much better after having a 20 minute nap which I fitted into the day to suit me.

    Medication I started a slow withdrawal around week 8  gradually reducing the oramorph then the co codomol If you’ve got a cancer nurse a ring to see if they can suggest a withdrawal program for you ? Mention your weight as well I did loose over a stone roll me 15 month to regain that weight 
    I too was fit and healthy I had cycled 1100 km the month prior to diagnosis. I am almost back to the same level if fitness now. 
    hooe this helps and pop,on with any questions. 
    my blogs below with links to other site ut may help you. I took my ng tube iut week 3 and forced myself to swallow the ensures with nurses permission of course. Well done on completing treatment recovery now begins

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi. I had the same primary and secondary as you. I had similar problems with mucus but it stopped after about 8 weeks on its own.  X

  • Thank you Clare, Dani and Hazel. The information you have given me has lifted me enormously. I am not one for normally using forums, but I will definitely be checking in and offering support to others.

    Take care xxx

  • Some days I spent the whole day with my head over a bowl and there was nothing I could  do apart from hope it would get better and it did so don’t worry x 

  • Hi Sue - I had tremendous problems with mucus (you really have my sympathy) and it seemed to start going after about 6-8 weeks after treatment - I tried the hot water and bowl method but it did nothing for me so in the end I bought a portable nebuliser and used with a pretty strong saline solution (I used 7% but your nurse/doc can advise) it really helped me clear my airways first things in the morning after waking.  I found it was the only thing that made any difference and although the mucus still ran it’s course, the nebuliser eased things.  All the best, Kim x

  • I think I was lucky but my mucus just disappeared literally overnight 2 weeks after I finished radiation. Radiation ended 6th July and I've put about half a stone on since then eating lots of naughty foods! I'm just on co-codamol and paracetamol and have reduced to half the amount I was on. 

  • Hi All

    Since I last posted, my partner and I have been diagnosed with Covid. It's ironic, we have managed to avoid catching this over the past 2 1/2 years 

    The only time I have left the house is to go to hospital and my partner went to a funeral. 

    The community nurse came to check the balloon in the RIG, she said my temperature was high and advised to do a Covid test. Tested positive on Wednesday, wasn't too good Thursday pretty much slept for 24 hours just waking for meds and feeds. 

    Feeding tube got blocked yesterday and I had to go back to hospital, luckily I was over 4 weeks since insertion, so could just replace the tube.

    Hopefully, going to resume with my recovery without any further hiccups

    Sue xx

  • Hi Sue oh dear hope you are ok ,just keep hydrated and on the pain killers hopefully you’ll just get a mild dose. I lasted 2 years without getting it.Think  I eventually we all will get it. 
    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Oh Sue. Get well soon. I spent a couple of days under a duvet in the sitting room watching rubbish tele but I was fine after a few days. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge