Not Quite Out of the Woods Yet

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Got the results of my 12 week post treatment Pet-CT scan today & although it showed complete metabolic response on the left base of tongue where I had two surgeries for a T1 SCC tumour & my left neck where I had a selective dissection with 33 nodes taken there's a suspicious node on the right side neck so I'm to go for ultrasound & MRI. 

I was told there was a 15-20% chance of surgery being enough so I knew it was a gamble. I have everything crossed that I won't have to go forward for chemo radiation. The surgeon has always been optimistic, the oncologist not so much. He was keen that I have chemo radiation following surgery because my tumour wasn't a neat little bundle but rather it was spiculated or star shaped which increased the risk of cancerous cells being left behind. 

Waiting game again now. Blah. 

  • Bleurrrrgh...Not the news you want. Fingers crossed everything is OK but at least you have RT in the ammo box if needed. Hope you don't 

    If it's any consolation Oncologists are a wary lot. My surgeon considered me cured after my PET and Biopsy (hot spot too but biopsy negative) My Oncologist, when I mused how to thank a complete stranger for saving my life, quick as a shot came back with....."Don't thank me, It might come back" Good job I have a sense of humour and three years later I'm still here

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Wryneck sorry it’s not what you wanted  to hear , fingers and toes x for you. Hopefully you won’t need chemo radiation but at least it’s there in reserve if you do need it. If you do  there’s lots of us  here who will help you navigate through it. 
    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thank you Hazel. It is what it is eh? 

  • I've only met one of each but they are chalk and cheese! Thank you for your encouragement. 

  • You’ve come this far let’s see what mri and ultra sound say. Hugs Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • I've only met one of each but they are chalk and cheese! Thank you for your encouragement. 

    Yes. Surgeons see the result of their work in front of them and are an optimistic lot.

    Oncologists much more circumspect. 

    Mine are both crazy, however, but in a nice way

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • It’s not just the oncologist and surgeons who have a different attitude. My dental specialist is lacking a little in tact. When I started seeing her in 2013 with my first cancer she was very upfront. I was on the path of ‘this is behind me now and I am moving on with my life’. She said to me ‘I’ve seen people with this before and they keep coming back needing more and more chopped out’.

    Something I did not want to hear even though it may be quite true in my case. It was a bit of a downer when I needed encouragement not negativity. Sometimes it is good to keep your thoughts to yourself even if they may be true.

    She is very good at her job and has done well for me over the years and I know I will always get a straight answer from her. Several times she has suggested that I go back and see my specialist about something she is concerned about and mostly she has proven to be right.

    Our specialists bless them, they’re only human.

    Lyn

    Sophie66

  • Hi Wryneck

    after my surgery I was told that I didn’t need RT or Chemo, I questioned why as I thought it would be good to double zap the area. I was told that RT cannot be done twice ( I didn’t know that ) so it was kept in reserve should I ever need it. Fingers crossed your scans come back ok 

  • She said to me ‘I’ve seen people with this before and they keep coming back needing more and more chopped out’.

    Crikey, she was right but you could have done without her being so forthright. 

    I don't know how they do it, they do awful things to us, they deliver some of us to Charon, go home to put a brave face on in front of a world that is completely oblivious to what they do then come back the next morning to do it all again.

    Like you say, Lyn, they are only human

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Oh poo Wryneck.  But at least they've identified something quickly and are looking into it.

    Fingers crossed for those scans.

    Linda x