Update

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Hello everyone  just giving a little  update. All prep work  was done last week and thanks for your support. 2 teeth were moved as advised by orthodontist. This was done in the hospital and totally  painless and professional, the worst bit was no tea for  24hours.Then Wednesday  i went in for  the peg fitting as advised  this would  be hugely  beneficial to my recovery if needed as nutrition is so important. It all  went very smoothly and was painless again and they were all so nice and reassuring, stayed overnight to be monitored lots going in the ward so not much sleep. In the morning  saw the doctor and the nutritionists we had some more checks and I was shown how the peg worked then I was discharged. 6days passed now the soreness has nearly gone all managed by paracetamol .My first treatment was yesterday 16th Feb Chemotherapy followed by Radiotherapy. I went in feeling  very positive and my only  thing I could compare it to was a long haul aeroplane flight. Tea  soup snack sandwiches yogurts sleep music book reading toilet trips and of course the treatment. The staff were all fabulous. I'm on my way .

  • Thanks for the update and great you are feeling so positive. My husband will be a few weeks behind you so please keep sharing your journey. 

  • Will do and wishing  him the best .Its definitely  for me alot easier now  treatment  has started i know it will get tougher but when those times come i should be in full fighting  spirit .Thank you for your reply 

  • Hello Perry, as a fellow wife I feel for you. Also my hubby is now 14ish mths post treatment and doing fine,having to cope with some side effects,I remember our journey as it was yesterday. And like you,once we knew our treatment plan and our first treatment behind us it became easier to come to terms with the situation. So on this note, all the best for the rest of your journey,I hope it won't be to harsh.  Hugs Mel x

  • Good on you Perry, you sound like a strong character and you have come through that awful uncertainty between initial diagnosis and start of treatment.

    Yes you are in for an increasingly tough few weeks but you sounds well prepared. In a way you can't fight it, you just have to get through it, one day at a time. Ask for more/different meds if it gets too bad, and take all the support you can get. This forum was so helpful for me when I was in treatment and recovery - stick with us & let us know how you get on. 

    Catriona

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 3 years all clear. See my profile for longer story

  • PS this may seem a bit random but if you have private pension funds or savings and are over 55, look into getting an annuity - you get much better rates with a cancer diagnosis. That was my silver lining! 

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 3 years all clear. See my profile for longer story

  • So pleased it's all gone to plan, Perry and the PEG fitting went ok, i remember how busy the wards were and the sleepless nights. Wishing you all the best for the rest of your treatment,take care.

                                                                    Chris 

    Its sometimes not easy but its worth it ! 

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  • My treatment started on the 16th

    Peg fitting on the 3rd of March 

    4th radio today 

    Only downside from chemo on Mon is little bit constipated. 

    But my team are aware

    Meeting with dietician yesterday 

    Pretty much eat as I am 

    Cakes, cream lol

    Missed my speech therapist as busy but we will catch up

    Not a concern as eating well 

    Jaw movements good 

    T4 N1 M0 HPV +

    Left side toncil  back of tongue , left side node.

    6 weeks of chemoradiation .

    6 sessions of chemotherapy (cisplatin )

    30 sessions of Radiotherapy .

     I Have cancer

    CANCER DOES NOT HAVE ME !

  • Hello Nick.Glad your underway too..I've so far escaped the constipation from the chemotherapy  session  but it stead have had the heartburn  which is horrible,but I have been  given gaviston. And the after meds finish  today.Then I will have more when the 2nd chemo is due in the 4th week.The peg has been ok a little  discomfort after but managed with paracetamol. The dressing  is hard to keep stuck down and my Mrs is on it.Maybe good idea to shave the area but mine is still coming unstuck.Im also still eating just fine and mouth movement  all good.number 4 Radiotherapy today.

    T2 N1 M0

    chemotherapy ×2

    Radiotherapy ×30

    Good luck with it all Adam (perry)

  • You can buy peg covers ,holders on amazon mate .only a few quid 

    T4 N1 M0 HPV +

    Left side toncil  back of tongue , left side node.

    6 weeks of chemoradiation .

    6 sessions of chemotherapy (cisplatin )

    30 sessions of Radiotherapy .

     I Have cancer

    CANCER DOES NOT HAVE ME !