Hey all. So we had our consultant appointment today post my husbands parotidectomy and neck dissection. Cancer was in 7/42 lymph nodes and was extracapsular in lymph nodes. Consultant explained this is an aggressive indicator but I think overall still gives us a good shot with radiotherapy. Am trying to stay positive. Has anyone else further down the journey has extracapsular spread? Thank you xx
Hi,
My partner had T2 N2b M0 HPV+ tonsil cancer with extra capsular spread. He had TORS surgery and then we found out about the extra capsular spread and our surgeon said that this would mean he would need Chemoradiotherapy as it could mean a more aggressive cancer. This absolutely floored us as we were really hoping the surgery was going be enough to sort him out and sent both of our heads spiralling into an awful place.
Tomorrow, he will be a year out of treatment and in his words he is back to being the ‘normal idiot’ he has always been 
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Do not Google it, it will send you down a rabbit hole that you don’t need and I think all extra capsular spread is indicative of now is adding in chemo with the radiotherapy as a gold standard treatment
Best wishes,
Nikki
