Nasopharyngeal Carcinoma

Hi Basbaw lMy friend Neil who I met in first day of treatment had nasopharyngeal he is still around 3.5 years alive and kicking yes it’s rare he had like me 35 radiotherapy and chemo cisplatin. He’s back at work as a builder in fact he was back at work 6 months after. I’m sorry yiuve Ben told outcome is poor was there any treatment plan offered ?

Or course we are all different 

Hazel  if yiu look at my blog below on our ruby wedding photos of me with Neil tall guy grey hair.

Hi , I am going to have chemo first 3 cycle, 3 different drugs …. And radiation and chemo after ,  shock to me as I been told by ENT that it will be fine , and today I been told that I have a little chance …

Who told you that there is little chance of cure? Your oncologist? I think you need to sit down with him and get the story straight for your peace of mind. It seems to be a miserable inconsistency between departments. What chemo are you having?

Docetaxel, cosplaying and fluorouracil  for start ,3 cycles and scan after and radiotherapy and chemo therapy together 

You have tough time ahead. I have a friend who had the same combo for hypopharyngeal cancer. She is well a year out of treatment. The only thing I can suggest is that you try to b build yourself up before you start. Put some weight on and get some exercise in to improve strength. No matter how rare the cancer there are lots of folk here to help, to listen to your worries and rants so please stick around. A day at time to get you through.

Thank you, I do not have much time to put on weight as I going to start my treatment on Tuesday. 
only positive thing is that I don’t have to wait long for treatment 

Hi Basbas

I read your post yesterday and I've been stewing over it ever since!

There have been numerous people on the forum who have had treatment for nasopharyngeal cancer but I've not heard of anyone being given such a bleak prognosis.  I do hope you get a response from one of them.

Wishing you all the very best.

Linda x

Thank you, hope I will have more optimistic view. 
but I had picc p reassessment and been told this same- not good 

Hi Basbas

I was diagnosed with sinus cancer 2 years ago. I had 2 cycles of TPF, was meant to have a 3rd cycle but covid hit so my radiotherapy was bought forward. 

I was told it was a rare cancer and the tumour was too big to operate. I was never told by my oncologist that outcomes are poor. My oncologist just said the aim was to shrink the tumour, then possible surgery. I didn’t have surgery in the end as the chemo and radiotherapy worked. Scans have not shown any signs of cancer cells, but I have been told I have changes in the frontal sinus and frontal lobe of the brain. My ENT team have now gone back to ENT specialists in Birmingham to see if the changes are down to radiotherapy. The first time they asked for their opinion I was told it was radiotherapy changes.

Tanya

Hi Basbas,

I have the same as you, advanced stage which has spread to the lymph nodes in the neck. I'm just starting my 3rd week of radiotherapy, had one chemo sesh and will have another on week 5 of my treatment.

I'm just starting to feel the effects of my treatment but i see the short term pain as a long term gain. My consultant has told me at this stage it's curative and I have a 75% chance of making it. Unless the medical profression say otherwise I'm seeing it as curable until they tell me otherwise.

It maybe worth talk to your Cancer Nurse Specialist.