Immunotherapy

Former Member over 4 years ago

23 replies
85 subscribers
2703 views

Hi again everyone. In case it's of interest to any of you who, like me are having I.munotherapy this is a really good interview to watch.

I follow the Institute of Cancer Research on Facebook, they have some really good articles and interviews with leading cancer professionals.

This one is particularly good, it's about the exciting developments with immunotherapy for Head and Neck patients.

Hope you find it as helpful as I have xx

www.cancerresearch.org/.../head-neck-cancer-immunotherapy-nabil-saba

Crofterlad over 4 years ago

Thanks for posting this - really interesting. I started immunotherapy with pembrolizumab for HPV16 HNC that went metastatic on me (to my lungs); am about to have 3rd cycle next week, and fingers crossed all still going well!

Former Member over 4 years ago in reply to Crofterlad

Glad things are going well Croftelad

Former Member over 4 years ago in reply to Crofterlad

Hi how are you finding it ?

I have my 4th round of Pembrolizumab next Wednesday, mine is for recurrence of Ca tonsill (17 years ago !!!). So far the only side effect has been fatigue. Hope it's not been too bad for you.

Good luck for your next one xx

RadioactiveRaz over 4 years ago in reply to Crofterlad

Hi Glad its all are going well.

Hazel x

Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo 3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life.
No questions too daft to ask.

I’m also an ambassador for https://oraclehnc.org.uk/

A leading head and neck cancer charity.

This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.

https://oraclehnc.org.uk/patients-and-carers/patient-hub/webinars

Beesuit over 4 years ago

That’s a really useful link Tillymint. Thanks for posting

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

Crofterlad over 4 years ago in reply to Former Member

I think I've been really lucky in that I've had zero side effects (apart from being shattered on day I get infusion only). I even ran a marathon this morning!! I should get results on if it is being effective on reducing the tumours next week. So fingers crossed. And thank you for asking :-)

Former Member over 4 years ago

Hi thanks I’m starting nuvalob (not sure of spelling) soon and have no one to talk to about it

Crofterlad over 4 years ago in reply to Former Member

I had some scan results back a few weeks ago, and they have shown that all of the 6 tumours across both lungs have stopped growing and that there are no new tumours. So the Pembro looks to have stopped the spread of cancer in its tracks. Yay! No significant sign yet of tumours declining in size apart from one I think.

How about you Tilly?

Crofterlad over 4 years ago in reply to Former Member

Hi Clarab, I'm always happy to chat, so drop me a reply anytime and I can send you eg my email.

What specifically will the immunotherapy be treating? I've had a look online, and looks like getting the drug is v similar to my having Pembro (that is a 30 minute infusion in hospital after a short infusion of saline through a canula). The whole process is very quick. Best, Anson

Former Member over 4 years ago in reply to Crofterlad

That’s good news pleased to hear it it’s to stop the cells keep growing and get control of things the surgeon won’t touch it so I’m going to get a second opinion

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