Immunotherapy update

Hi Tilly, thanks for the update. I'm pleased the side effects aren't too bad. Can't throw any light on the MRI experience except maybe to point out that the problematic one was after treatment. Could the immunotherapy maybe sensitising you somewhat?

Hi Tilly,Thank you for the update ,everythjng crossed for you and that the beastie continues to respond to the immunotherapy.

Hugs Hazelmxx

Hi, yes maybe that's the reason. I read an article on the effects of MRI's on the fluid in the middle ear. Apparently the magnetic component in the contrast that they inject can cause disturbances in the fluid in middle ear ??? Could well be down to that ??

Anyway I've mentioned it to the research nurse just in case anyone else experiences it.

Xxx

Thanks Hazel hope everything's OK with you xxx

Hi Yes all good with me thank you. Had yearly oncologist meeting on Monday he’s happy so I’m happy. 
Hazel xx

Well that's just great news Hazel, I'm so happy for you it's another big milestone reached xxx

Hi Tilly.  Good that you mentioned how you felt after the scan, but it could be little more than coincidence.   Don't forget that immunotherapy side effects can come and go and can kick in at any time, even long after treatment has stopped, so it could just have been a side effect blip. My husband is having the same treatment and with the exception of the first one, has tolerated it really well. Fatigue and memory problems are the biggest ones and we can cope with that - can be a bit frustrating at times though.  Hope things continue to go well for you

Hi, yes you are probably right about possible side effects, it's a crazy one. Last time around I had Chemo and radiotherapy very quickly after very radical surgery so I was totally floored. This therapy is very different but it can range from feeling absolutely fantastic one day (yesterday) to feeling like I've been run over by a steam roller today !!

On the positive side my hearing which has been so impaired since last June, has started to improve !! So I'm hoping that is due to some shrinkage of the tumour  fingers and toes crossed. 

I hope things are improving for your husband too, how many sessions has he had so far ? 

Have a lovely Sunday, the sun is actually shining here today, that's always a positive isn't it xxx

Hi Tilly.  It is indeed crazy.  Unfortunately, this is our second time aboard this particular roller coaster, 10 years after the first one.  We used to describe it as being on the world's worst merry-go-round and nothing has changed. Immunotherapy is our only hope as other treatments have been ruled out because of where the cancer is and due to previous surgery and radio and chemo treatment, However, he is coming up to treatment number 5 on the 24th.  Next round of scans due next month.  Last ones gave us a little bit of hope, so we are cautiously optimistic (a little bit) we try not to get carried away. His eating has been badly affected and his speech too, but things have improved in both areas and we have managed to avoid the dreaded peg!!

Good news about the hearing improvement, everything crossed that it is because of a shrinkage of the tumour.  

Hope your next treatment goes well Tilly.  Will be thinking about you. Let me know how it goes.

It;s been raining here, but the sun is finally starting to come out even though it is quite cold.

Thank you so much, this is my second ride too, 17 years since my first one, hard to believe it's been sitting in there all that time waiting to pounce but there you go. 

I am in the same position as your husband. Can't have further surgery or radiotherapy so this is my best shot. All we can do is go with the flow and hope and pray that it works it's magic on us.

I survive mainly on Ensure drinks and soups, I can still manage a lot of puddings so every cloud and all that !!

I'll keep in touch and hope that we all come out on the other side still smiling.

Take care xx