Not the best news at this time of year but I am back on the roller coaster of treatment for my mouth cancer related to the lichen planus that I have had since I was in my 40’s. I have already had 2 operations one in 2013 and one in 2019 with radiotherapy both times and recovered quite well from both after some adjustment time.
I have been able to get on with my life fairly normally although after the last operation had to adjust to my altered ability to eat but have now have got a handle on it and am getting on quite well.
I have always known that the condition I have has to be managed and cannot be cured so it is no surprise that I need another operation as a recent biopsy has shown more cancer in my upper jaw and palate. I am having scans next week and will then meet with my surgeon to find out the extent of the operation. From what he has told me initially it looks as though it is going to be another big one. I will hardly need a dentist at all soon as it looks as though I probably won’t have any teeth left in my upper jaw and will just have the teeth in my lower left jaw left.
At least there will be no more radiotherapy as I have had my quota.
I am not looking forward to another big operation but ‘needs must’ as I am not prepared to give up yet as there are still lots of things I want to do. I feel most sorry for my husband who has already helped me through the previous operations. He is such a support.
I just want to say a big thank you to this forum as you really helped me through the recovery after my last operation. Your support has meant such a lot to me and I know with your help I’ll get through this one too.
Best wishes to you all wherever you are in your cancer journey.
Lyn
Bless you Lyn, so sorry to hear that you will need another operation, i know the feeling so well about facing up to big operations but as you say "needs must" . I had the same thoughts as you and never gave up as i knew i still had a lot to live for. I have no bottom teeth due to bottom jaw reconstruction and cannot speak but like you i have learned to adapt to my new way of life. I certainly could not have gone through it without the help of my family and friends. Good luck with your scans and the appointment with your consultant, i know they will continue offering you the best treatment available. Wishing you and your husband all the best.
Hugs
Chris xx
Its sometimes not easy but its worth it !
So so sorry Lyn. You are a great stalwart of this forum. Your wonderful support and wisdom has helped many through their darkest days.
Don’t worry too much about your husband. Stan and I have talked about these things and honestly it sounds like you have a wonderful partner just like mine. Let him look after you and bear some of your anguish.
I wish I could hold your hand and give you a huge hug in person but will have to make do with cyber one.
Bless you Lyn and hang on
Best wishes xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
