Anyone had it, anyone know anything about it.
Had a meeting withy local NP yesterday where it was spoken about very negatively as my tumor would swell even more.
I thought doses were very low to negate this symptom.
My trial team thought it could do me a lot of good for quality of life, eating, swallowing etc But my local team suggested that it wasn't an option.They also said that my tumor was too large to have a peg tube inserted.
It was all very negative & left us feeling we'd been stuck on the 'waiting to die' scrapheap but without knowing when.
Any input greatfuly received...
Good evening Surfer69, this sort of treatment is offered to keep the tumour under control and as you give people a better quality of life, i would push for the trail team if they think it would help as you have nothing to lose but hopefully a lot to gain. Unfortunately, we can only offer advice so hopefully between your trial team and the local team they can offer some sort of help. Wishing you all the best, take care.
Chris
Its sometimes not easy but its worth it !
Hi Surfer. Can you get a second opinion from a large specialist cancer centre? At least ask about a RIG which is inserted differently? Just a thought
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
