Hey all
I have had treatment for tonsil cancer (with spread to lymph node) in the past.
About 2 months ago i noticed that if i yawn or put my tongue out i get discomfort on one side of my tongue. After looking for a while i spotted a small lump on one side and on the lower part of my tongue
I emailed my consultant about it, as i wasnt sure whether to ignore (and it had been there for 4 weeks) and he said best to have a look
When i went in he looked for 2 seconds and said its due to my tongue rubbing against my tooth and it will heal eventually, he said not to worry and im just more susceptible to this stuff due to treatment..
I was very reassured, he must look into thousands of mouths at the end of the day.
Roll on 4 weeks after seeng him and its still there, should i still be relaxed about this? is it being paranoid to book a dentist appointment about the tooth (which perhaps can be filed) and have him take a look? and finally has anyone else had issues with tongue sores that take forever to heal a long time after treatment?
I appreciate i probably come across as some sort of paranoid hypochondriac, and the truth is before cancer, i would ignore it- but now i find that hard to do.
Thanks
Hi Trev maybe cut it down to 10 a day but cut those pieces in half and drink more water ?
hope it’s sugar free gum you’re using as well remember our teeth need less sugar with less saliva.
hope it help s
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Ha god yes it is xylitol gum
I take a toothbrush with me everywhere and clean after every meal, not sure why dentist even booked me in with the dental hygienist as she said my teeth and gums were spotless :)
Just ret less gum. H
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
, not sure why dentist even booked me in with the dental hygienist as she said my teeth and gums were spotless
I’m the same. I just now get them to put in a varnish and not bother with anything else
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Good evening Trev, thats a lot of chewing gum to get through in a day, i would not be too overly concerned as the hygenist has looked at your teeth and gums. If it was a tumour it would be visible and noticeable to the trained eye , i still get sore gums in two areas if i drink something different to what i normally drink, mainly drinks that contain acids like fruit juices. Hopefully, start cutting back on the chewing gum and you should notice the difference plus less wear jaw joint. All the best.
Chris
Hi Trev
You need to go through a process of elimination to see if it is something you are doing that is causing the ulcers apart from the probable rubbing of the tooth.
I had the same issue with ulcers a couple of months ago so had to do this. Firstly I thought it might have been the extra fluoride toothpaste that I had prescribed by my dentist so I stopped that but the ulcers continued. I then thought it might be the electric toothbrush so I stopped that and went back to my normal toothbrush but it was not that.
I then stopped using Xylimelts at night and bingo after a few days the ulcers disappeared. It turned out that the place on my gums where I stuck the Xylimelts was too tender to cope with the Xylimelts. Each ulcer coincided with where I stuck the Xylimelt.
I stopped the Xylimelts all together and I no longer have the ulcers. As for the dry mouth issue, I have started using Biotene dry mouth spray and sometimes sucking Therabreath Dry Mouth Lozenges along with lots of sips of water. This seems to be helping so maybe you could look at alternatives to help with the dry mouth.
As you have suggested perhaps it is worth a try stopping the chewing gum as the constant chewing may be the answer. If after you have stopped it for a week and the ulcer remains start eliminating other possible reasons.
Best of luck
Lyn
Sophie66
No you're right chris, its just because it is painless (it is mildly irritated) and been there so long... and when i first had tonsil cancer it was dismissed as an infection despite also being painless.
But i actually highlighted this for concern with the hygienist and they are trained to look at these things at the end of the day. I do have a sloping tooth in the area which is what the hygienist thought was causing the issue (rubbing) but itwas filed months ago.
As suggested ill stay off the gum for a few more days and if no improvement ill email my consultants secretary for advice, explaining its the issue i saw him about in august...but it has not improved despite dental work
I just hate the idea of being a paranoid nuisance patient.
I just hate the idea of being a paranoid nuisance patient.
It can be just awful. I’ve seen my team twice out of sequence and conscious of that I’ve organised an MRI off my own bat over something else. But don’t worry. Mine were wonderful and couldn’t be nicer and more helpful to put my mind at rest
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Well giving up gum didnt help
Does this sound ok guys?
It is to my consultants secretary.
___
Hi ###, sorry to bother you when I know everyone is so busy after covid
I am a patient of ###, My NHS number is ###
In august 2021 I contacted ### about mild irritation when yawning or putting my tongue out and a painless lump on the lateral part of my tongue, he saw me in august 2021 and said it was traumatic, from my tooth rubbing against my tongue and advised me to get my tooth filed
I saw my dentist who also thought it was ‘probably traumatic’ and filed the tooth for me, but five months later this has not improved.
I think I am due a check up in feb / march anyway, should I wait until then? I hate the idea of being a nuisance patient, but I am concerned about ‘painless lumps’ nowadays.
I have given up chewing gum in case the gum I chew (to keep mouth moist) is part of the problem but it does not seem to have helped
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