Lump on side of tongue

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Hey all

I have had treatment for tonsil cancer (with spread to lymph node) in the past.

About 2 months ago i noticed that if i yawn or put my tongue out i get discomfort on one side of my tongue. After looking for a while i spotted a small lump on one side and on the lower part of my tongue

I emailed my consultant about it, as i wasnt sure whether to ignore (and it had been there for 4 weeks) and he said best to have a look

When i went in he looked for 2 seconds and said its due to my tongue rubbing against my tooth and it will heal eventually, he said not to worry and im just more susceptible to this stuff due to treatment..

I was very reassured, he must look into thousands of mouths at the end of the day.

Roll on 4 weeks after seeng him and its still there, should i still be relaxed about this? is it being paranoid to book a dentist appointment about the tooth (which perhaps can be filed) and have him take a look? and finally has anyone else had issues with tongue sores that take forever to heal a long time after treatment?

I appreciate i probably come across as some sort of paranoid hypochondriac, and the truth is before cancer, i would ignore it- but now i find that hard to do.

Thanks

  • Good evening Trev, i had similar and they filed the tooth down a bit  as it was a bit sharp and it was causing soreness of my gums and tongue, the trouble is the mouth, gums etc will change a bit after treatment or surgery causing discomfort, the filed down tooth or teeth helped me, its worth a try if it continues . All the best take care.

                                                                                   Chris

    Its sometimes not easy but its worth it ! 

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  • has anyone else had issues with tongue sores that take forever to heal a long time after treatment?

    Yes me. My tongue and cheek burn along the treatment side and I get sore a throat with weather changes 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Trev. Yes a 3 years I still get tongue issues tiny white ulcers if I overdo it on food issues eg we are over in Spain I tried pickled olives gherkins etc the other night.  Next morning  2 ulcers on end of tongue. If I stretch tongue too much I get pain on cancer side. But you do the right thing get it checked. As time goes by we learn what’s our new normal. 
    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Trev, I've had had molar taken out as an infected root was interfering with my PET scans.  The upshot of this is that I rub and sometimes bite my tongue on the sharp molar that remains behind the one taken out.  With the tooth there it was never a problem as my tongue could not get into the space.  Now I often bite it and draw blood and it always feels a little sore and swollen.  Over time I will either get used to it and not get my tongue in there or I will get the dentist to smooth the remaining molar out so I don't cut it so frequently.

    As to running the red flag up about potential cancer reoccurrence; don't be embarrassed to do that.  Every change I discuss with my clinical team just in case - and as they told me last time I saw them, better a false alarm than ignoring a real problem until it is too late!

    Peter
    See my profile for more details of my convoluted journey
  • Thanks guys you have been brill as always. I do know i need to be more relaxed about these things

    I will get in to the dentist and see if the tooth can be filed.

  • Hi Trev

    I think it's really good to be on the ball with any new issues and, like Peter, my team would much rather I contacted them with any changes or concerns so they can check them out promptly.

    Linda x

  • Didnt want to start a new topic on this, but - 3 months later i still get irritation and ulceration, its never gone in 5 months.

    My dentist filed back my tooth but it doesnt seem to have helped

    I saw my dental hygienist today who said my gums and teeth are spotless and healthy (great)

    But she said there was ulceration on my tongue.

    Again she was totally relaxed about it, thinks its my tooth rubbing my tongue... but it is hard to ignore irritation that lasts 5+ months? 

    I do chew a tonne of gum and wonder if this is making it worse? I literally get through a box a day of gum.

    I guess i am being over anxious.. i am due to see my dentist again in april, would you guys raise the concerns or am i just being a hypochondriac? 

  • Hi Trev. It’s possible you’ve answered your own question if you’re chewing lots of gum it can irritate .But as always  contact your e n t consultant the gate the best ones to ask. Your dentist is good but if it was me I would contact e n t. Always better to check has you won’t be happy until you have done. So give them a call tomorrow. I still get ulcers from various foods and burning tongue but I know why so I can live with that. As fir a box of gum you’re it talking  of the 60 piece tubs are you ? Do you chew the gum then park it  up between gum and cheek to re chew later ? I probably b go through 6 pieces a day broken in half as well try that tip 
    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Trev

    I agree with Hazel.  If you're concerned then I suggest you contact your team for them to take a look.  Hopefully they will be able to put your mind at rest.

    Linda x

  • Hi Raz

    Yes i know its awful, i chew 60 gums a day, i might just stop gum altogether for a week and see if it goes. I started because it helps with saliva so much but could stop

    I am conscious of the fact i contacted consultant about this same issue in august to be honest (and was told its just rubbing on my tooth) which is putting me off doing it again

    My tonsil cancer was initially misdiagnosed as tonsillitis, which i think plays a part in me being less trusting

    Will try no gum for a week, and if no better will contact consultants secretary

    Thanks again