Treatment starts on Monday

Hi Speedbird welcome to our small community group. The first week is usually uneventful but as we all know we all react differently.Remember to keep your team up to date how you are  feeling .If you are having chemo if your anti sickness aren’t working let them know. 
Good  luck

Hazel

Hi speedbird,  by tomorrow evening you will wonder why you were nervous, I was fine for the first 10 days in fact, you will be fine and I wish you well.

I'm 7 weeks post treatment now, still got a dry mouth and I can't taste 50% of foods, my neck seems to be tightening up again , maybe it's the treatment having a final go at me .

I'm virtually off my meds, only take them if I get sore by eating the wrong foods.

Still really frustrated with everything, I shouldn't be as I'm making progress but God its so so slow  

Hope everyone here is still OK, 

Mark  

Hi Mark.

Cheers I went through hell 21 years ago with Aids but I'm here to tell the story and its the fear of going through any of that again that I fear. You read up about so many hideous side effects some very scary. I guess you didn't go through those naseau I think is common. So glad your through it and on the mend.

Hi Mark great to hear from you. Yes slowly slowly I’m afraid is the way to go. You’re getting there. Are you doing your swallow exercises that will help you have you been checked for  lymphedema ie swelling if your  neck it’s quite common in recovery. Ask your nurse or consultant. 
there’s masssge techniques if it is lymphedema.

bet you’ll manage some Christmas dinner.
Hazel x 

Hi  I havnt been checked for lymphedema no, it doesn't look swollen just feels tender at times, the outer skin is fine, so I'd assume its trauma on the inside.

Speedbird , wow, if you can beat aids you can win this fight, I'm so sorry you have had to deal with both diseases.

Regarding the side effects as I'm sure you have read everyone's different, I refused a feeding tube and I've since been told the lack of nutrition would have made my side effects worst, I also didn't chase or take my meds correctly, big mistake lol. 

I sincerely hope you get through the treatment with minimal side effects. Please enjoy some lovely expensive food this next week, 

Mark

Hazel, I'll try some dinner on Xmas day yes, lol, I need to put some weight on 

Hi Speedbird, like Mark I’m in week 7 post treatment, which was just 2 chemo and 30 RT sessions.

Had it not been for the Chemo I would have been fine for the first couple of weeks. I’m afraid the sickness is very common but for me it lasted a short time.

The RT is hard going, particularly the last couple of weeks but it’s doable and I can say that with conviction having done it! I was very close to pulling out in the last week but something keeps you going and then at last the final day! It’s then a sometimes frustrating process of recovery.

I was feeding via a PEG for the first few weeks as eating wasn’t an option but I’m now on day 24 of not using it and for me that’s great progress! I’m no longer taking any meds apart from a saliva gel at night, which is a life saver!

Take each day at a time, as difficult as it sometimes can be try to think positive. 

Good luck.

B

Hi Mark good fir you. As for weight took me 15 months before weight crept back on. I could eat cream cakes all day if I wanted to not an ounce  then it was like a light bulb moment .I started to put weight back on  

On Christmas dsy just go for a little bit of everything on mains leaving room for pudding! 
Hazel xx

Will do, :) I'm two stones lighter from 11,4  stone , but I've got my appetite back at least,

Ref the previous return to work / superman comments,  if you could have all seen me crying in the corner two weeks after treatment ended the description superman would have quickly been retracted lol , and I'm not joking I'm afraid.

Hi Mark. Appetite is good work with that. We have all sat in a corner and cried at some point. Then got up shook ourselves down and carried on. 
Hazel xx